A toddler, a night shift and no appetite

Started 7 June 2026 · 13 replies · 90 hearts · read 1.5k times

CarlMiddlesbrough, UK · 7 June 2026

1 month ago

Starting a thread on this because it keeps coming up in ones and twos: A toddler, a night shift and no appetite

Anyone else navigating this? I feel as though every piece of advice I read was written for someone with a completely different week.

What I would find most useful is not advice. It is somebody describing what their version of this was, and how long it went on for.

I am aware some of this may be nothing. I would still like to know whether other people have had it, because I have spent a fortnight assuming I am the only one.

Anyway. Thank you for reading this far. Any experience gratefully received, and I promise to come back and say what happened.

PoppyLeeds, UK

Two things that helped me, neither of them clever: small amounts more often, and drinking a lot more than felt necessary.

PipBristol, UK

I would take that to a clinician rather than to us, and I would do it this week. Not because it is definitely serious — because it is the sort of thing that is much easier to rule out than to worry about.

WrenFacilitatorLeeds, UK

the reply above — yes, and the bit that took me longest to accept was the next part.

Gently: you have apologised three times in a post where you have done nothing that requires an apology.

OrphBath, UK

Mine lasted about seven weeks and then lifted over a few days. I cannot tell you why. I can tell you it lifted.

SindriReykjavík, IS

Gently disagreeing with the reply above, or rather adding the other half of it.

Similar here, and mine turned out to be a completely unrelated deficiency picked up on bloods.

6me too 6

NualaArmagh, NI

I have been in this circle a year and this question comes round every few months. It is not a silly question. It is the question.

ZenBristol, UK

Please do not read the comments under news articles about this. I lost a fortnight to that.

IslaOban, UK

What the reply above described happened to me too, in a slightly different order.

I asked my nurse the same question and she said something I have repeated ever since: that the aim is to keep you on treatment, not to get you up the schedule.

TasnimBradford, UK

My experience was very boring, which I offer as data. Some of us just get a dull time of it.

OrvalWinnipeg, CA

#10

Building on what the reply above wrote rather than answering the original question.

What helped was lowering my own expectations of the week rather than trying to hold the week together.

6me too 2

BobbieRochdale, UK

#11

For what it is worth, the trial data on this is thinner than the confidence of the internet would suggest. Worth knowing when you read the posts.

WrenFacilitatorLeeds, UK

#12

If any of this has landed close to home for you while reading, our support resources page lists the kinds of services worth finding. No obligation and no drama.

GillyWorcester, UK

#13

The thing that changed it for me was going slower, agreed with my prescriber. I am not suggesting you do that. I am saying the conversation exists.