My prescriber wanted me to begin at the lowest dose and she was right

Started 26 January 2026 · 19 replies · 153 hearts · read 2.3k times

MableBolton, UK · 26 January 2026

6 months ago

Something I have been sitting with: My prescriber wanted me to begin at the lowest dose and she was right Not looking for advice so much as other people's experience.

I have been reading here for a few weeks and have not posted, so this is me posting.

What I would find most useful is not advice. It is somebody describing what their version of this was, and how long it went on for.

I have written down what has actually happened, in order, because I find that more useful than my summary of it.

Thanks all. Genuinely.

ZoraSarajevo, BA

Two things that helped me, neither of them clever: small amounts more often, and drinking a lot more than felt necessary.

6me too 6

AurelBucharest, RO

I would take that to a clinician rather than to us, and I would do it this week. Not because it is definitely serious — because it is the sort of thing that is much easier to rule out than to worry about.

InêsPorto, PT

Yes. All of this. I had the same in my third month and I remember thinking there was something specifically wrong with me, which there was not.

BenediktFacilitatorVienna, Austria

Building on what the reply above wrote rather than answering the original question.

Before anyone offers a remedy: what has been described here is on the list of things that need a clinician today rather than a thread. I am going to be firm about that, kindly.

NikolaiSofia, BG

Similar here, and mine turned out to be a completely unrelated deficiency picked up on bloods.

OttilieCheshire, UK

Reading the reply above, I recognised more of that than I expected to.

I have been in this circle a year and this question comes round every few months. It is not a silly question. It is the question.

11me too 9

NerysRhyl, UK

Coming back to this a fortnight later to say it settled. Leaving the update because I hate reading threads that stop.

Gwen DAberystwyth, UK

I am the person who had the frightening version of this. I went in, it was investigated, and it was not what anyone feared. Going in is the whole of my advice.

MableBolton, UK

I am about four months behind you and I have been dreading exactly this, so thank you for writing it down before I got there.

ZoraSarajevo, BA

#10

Reading the reply above, I recognised more of that than I expected to.

Yes to the burping. It is real, it is unbeautiful, and it does settle.

AurelBucharest, RO

#11

The thing that changed it for me was going slower, agreed with my prescriber. I am not suggesting you do that. I am saying the conversation exists.

InêsPorto, PT

#12

Have you got anyone who can be with you when you do it? It made an enormous difference to me and I felt silly asking.

BobbieRochdale, UK

#13

Practical, boring answer: write the three questions down before you go in. I have never once remembered them otherwise.

NikolaiSofia, BG

#14

Gently disagreeing with the reply above, or rather adding the other half of it.

I did exactly the same and felt terrible about it. You have not done anything wrong.

10me too 4

OttilieCheshire, UK

#15

Reading the reply above, I recognised more of that than I expected to.

It got worse before it got better for me, which I wish someone had said. About ten days of worse.

9me too 9

NerysRhyl, UK

#16

For what it is worth, the trial data on this is thinner than the confidence of the internet would suggest. Worth knowing when you read the posts.

Gwen DAberystwyth, UK

#17

My experience was very boring, which I offer as data. Some of us just get a dull time of it.

BenediktFacilitatorVienna, Austria

#18

Two things, both boring. First, none of us can tell you what to take. Second, the conversation you want to have is with your prescriber, and we can help you write it down.

ZoraSarajevo, BA

#19

I asked my nurse the same question and she said something I have repeated ever since: that the aim is to keep you on treatment, not to get you up the schedule.