Pain that wrapped round to my back and would not settle

Started 17 April 2026 · 14 replies · 83 hearts · read 991 times

MarenBremen, DE · 17 April 2026

3 months ago

Starting a thread on this because it keeps coming up in ones and twos: Pain that wrapped round to my back and would not settle

Before anyone says it: yes, I have an appointment booked. I would still like to hear from people who have had this.

Here is where I am. The medication side has been more or less as described, and the part nobody prepared me for is everything around it: what to say to people, how to plan a week, and how to tell the difference between a thing to endure and a thing to raise.

The thing that has surprised me most is how much of this is about other people rather than about me.

Sorry for the length. If anyone has been here, I would very much like to hear it.

NadirCasablanca, MA

Can I gently push back on one thing? Not the substance, just the framing — you have written twice that you should be coping better. Who told you that?

NilsUppsala, SE

My pharmacist was more use than anyone. Ten minutes at the counter, no appointment, no charge.

HéloïseGeneva, CH

I am about four months behind you and I have been dreading exactly this, so thank you for writing it down before I got there.

TomásFacilitatorLisbon, Portugal

Noticing out loud that this conversation has drifted into comparison. That happens without anyone intending it and it does not help anyone. Let us come back to the person who asked.

11me too 2

MaudGhent, BE

It got worse before it got better for me, which I wish someone had said. About ten days of worse.

3me too 1

CasperOdense, DK

For what it is worth, the trial data on this is thinner than the confidence of the internet would suggest. Worth knowing when you read the posts.

RaviLeicester, UK

Have you got anyone who can be with you when you do it? It made an enormous difference to me and I felt silly asking.

VivLuton, UK

Reading the reply above, I recognised more of that than I expected to.

The thing that changed it for me was going slower, agreed with my prescriber. I am not suggesting you do that. I am saying the conversation exists.

NanNeath, UK

I did exactly the same and felt terrible about it. You have not done anything wrong.

PerrinNice, FR

#10

Practical, boring answer: write the three questions down before you go in. I have never once remembered them otherwise.

7me too 5

GwenBangor, UK

#11

I asked my nurse the same question and she said something I have repeated ever since: that the aim is to keep you on treatment, not to get you up the schedule.

PersisBristol, UK

#12

the reply above said something I want to sit with for a second.

Please do not read the comments under news articles about this. I lost a fortnight to that.

TomásFacilitatorLisbon, Portugal

#13

Before anyone offers a remedy: what has been described here is on the list of things that need a clinician today rather than a thread. I am going to be firm about that, kindly.

BrammyBelfast, NI

#14

My experience was very boring, which I offer as data. Some of us just get a dull time of it.

6me too 4