A batch that came back wrong and what the member did next

Started 6 September 2025 · 18 replies · 165 hearts · read 1.9k times

TemSouthend, UK · 6 September 2025

10 months ago

A question rather than an update: A batch that came back wrong and what the member did next

I have read the paper and I am not sure I have understood it.

Here is where I am. The medication side has been more or less as described, and the part nobody prepared me for is everything around it: what to say to people, how to plan a week, and how to tell the difference between a thing to endure and a thing to raise.

I am aware some of this may be nothing. I would still like to know whether other people have had it, because I have spent a fortnight assuming I am the only one.

Not looking for a plan. Just company and whatever anyone has found.

GwionBangor, UK

Yes. All of this. I had the same in my third month and I remember thinking there was something specifically wrong with me, which there was not.

NolCork, IE

Mine lasted about seven weeks and then lifted over a few days. I cannot tell you why. I can tell you it lifted.

SunilFacilitatorBirmingham, UK

I want to slow this down a little. There are four different answers flying about and they are all somebody's real experience, which makes them true and not necessarily relevant to the person who asked.

LucasSão Paulo, BR

I would take that to a clinician rather than to us, and I would do it this week. Not because it is definitely serious — because it is the sort of thing that is much easier to rule out than to worry about.

TaviaPalermo, IT

Different experience here, for balance. Mine did not improve and in the end I stopped, and that was the right call for me. Both outcomes exist.

PerrinNice, FR

The phrase that unlocked my appointment was asking what specifically she wanted me to watch for. It moved us from reassurance to a plan in about thirty seconds.

SaskiaThe Hague, NL

No advice, just recognition. That sounds exhausting and I am sorry you are in it.

11me too 7

ShadeIbadan, NG

Building on what the reply above wrote rather than answering the original question.

I keep a two-line diary and it is the only reason I could answer this question about myself. Worth starting even now.

SindriReykjavík, IS

Can I gently push back on one thing? Not the substance, just the framing — you have written twice that you should be coping better. Who told you that?

TamsinRedruth, UK

#10

My pharmacist was more use than anyone. Ten minutes at the counter, no appointment, no charge.

OsipTbilisi, GE

#11

I asked my nurse the same question and she said something I have repeated ever since: that the aim is to keep you on treatment, not to get you up the schedule.

BramberSteyning, UK

#12

the reply above said something I want to sit with for a second.

Please do not read the comments under news articles about this. I lost a fortnight to that.

NylaNairobi, KE

#13

What helped was lowering my own expectations of the week rather than trying to hold the week together.

GittaBonn, DE

#14

My experience was very boring, which I offer as data. Some of us just get a dull time of it.

Ollie OPeterhead, UK

#15

Two things that helped me, neither of them clever: small amounts more often, and drinking a lot more than felt necessary.

TemSouthend, UK

#16

I am about four months behind you and I have been dreading exactly this, so thank you for writing it down before I got there.

SunilFacilitatorBirmingham, UK

#17

What the reply above described happened to me too, in a slightly different order.

I will leave this open for a few more days and then add it to the circle's resources, because the answers here are better than anything I would have written.

NolCork, IE

#18

Similar here, and mine turned out to be a completely unrelated deficiency picked up on bloods.

8me too 5