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Sterility is the risk that frightens me most

Started 24 April 2025 · 22 replies · 217 hearts · read 4.5k times

OsipTbilisi, GE · 24 April 2025
about a year ago

Something I have been sitting with: Sterility is the risk that frightens me most Not looking for advice so much as other people's experience.

Putting this here because I do not want to be sold anything, I want to know what is actually established.

I have read the guides here, which were more useful than anything else I have found, and I still have a question they do not cover.

The thing that has surprised me most is how much of this is about other people rather than about me.

My prescriber has been fine, genuinely. The problem is that I get nine minutes twice a year and there is no version of nine minutes that covers this.

Thanks all. Genuinely.

72

NazneenDhaka, BD
#1

Mine lasted about seven weeks and then lifted over a few days. I cannot tell you why. I can tell you it lifted.

11

SunilFacilitatorBirmingham, UK
#2

Gently: you have apologised three times in a post where you have done nothing that requires an apology.

16me too 3

TemSouthend, UK
#3

I have been in this circle a year and this question comes round every few months. It is not a silly question. It is the question.

8

GwionBangor, UK
#4

the reply above said something I want to sit with for a second.

Similar here, and mine turned out to be a completely unrelated deficiency picked up on bloods.

8

NylaNairobi, KE
#5

I asked my nurse the same question and she said something I have repeated ever since: that the aim is to keep you on treatment, not to get you up the schedule.

10me too 7

SindriReykjavík, IS
#6

Please do not read the comments under news articles about this. I lost a fortnight to that.

8

PerrinNice, FR
#7

Building on what the reply above wrote rather than answering the original question.

What helped was lowering my own expectations of the week rather than trying to hold the week together.

8

LucasSão Paulo, BR
#8

My experience was very boring, which I offer as data. Some of us just get a dull time of it.

6

ShadeIbadan, NG
#9

I am the person who had the frightening version of this. I went in, it was investigated, and it was not what anyone feared. Going in is the whole of my advice.

10

GittaBonn, DE
#10

Coming back to this a fortnight later to say it settled. Leaving the update because I hate reading threads that stop.

8

NolCork, IE
#11

I did exactly the same and felt terrible about it. You have not done anything wrong.

10

Ollie OPeterhead, UK
#12

Reading the reply above, I recognised more of that than I expected to.

Practical, boring answer: write the three questions down before you go in. I have never once remembered them otherwise.

12me too 2

BramberSteyning, UK
#13

Have you got anyone who can be with you when you do it? It made an enormous difference to me and I felt silly asking.

7

TamsinRedruth, UK
#14

The thing that changed it for me was going slower, agreed with my prescriber. I am not suggesting you do that. I am saying the conversation exists.

13

TaviaPalermo, IT
#15

Yes. All of this. I had the same in my third month and I remember thinking there was something specifically wrong with me, which there was not.

9

OsipTbilisi, GE
#16

Two things that helped me, neither of them clever: small amounts more often, and drinking a lot more than felt necessary.

5

NazneenDhaka, BD
#17

Gently disagreeing with the reply above, or rather adding the other half of it.

I would take that to a clinician rather than to us, and I would do it this week. Not because it is definitely serious — because it is the sort of thing that is much easier to rule out than to worry about.

12

SaskiaThe Hague, NL
#18

Different experience here, for balance. Mine did not improve and in the end I stopped, and that was the right call for me. Both outcomes exist.

8

TemSouthend, UK
#19

Can I gently push back on one thing? Not the substance, just the framing — you have written twice that you should be coping better. Who told you that?

9

GwionBangor, UK
#20

My pharmacist was more use than anyone. Ten minutes at the counter, no appointment, no charge.

11

SunilFacilitatorBirmingham, UK
#21

Before anyone offers a remedy: what has been described here is on the list of things that need a clinician today rather than a thread. I am going to be firm about that, kindly.

15me too 3

SindriReykjavík, IS
#22

Gently disagreeing with the reply above, or rather adding the other half of it.

The phrase that unlocked my appointment was asking what specifically she wanted me to watch for. It moved us from reassurance to a plan in about thirty seconds.

13