A peer support community, independent and not for sale. Since February 2024.

GLP CircleA peer support community

Sourcing safely

Two members, same supplier, very different experiences

Started 21 January 2025 · 16 replies · 164 hearts · read 2.9k times

PerrinNice, FR · 21 January 2025
1.5 years ago

Two members, same supplier, very different experiences Writing it down partly to work out what I actually think.

Evidence question. I would rather have an honest "we do not know" than a confident answer.

What I keep tripping on is not the physical bit. It is the not knowing whether what I am experiencing is normal, and having nobody to ask who is not either selling something or frightened for me.

My prescriber has been fine, genuinely. The problem is that I get nine minutes twice a year and there is no version of nine minutes that covers this.

The thing that has surprised me most is how much of this is about other people rather than about me.

Sorry for the length. If anyone has been here, I would very much like to hear it.

55

SindriReykjavík, IS
#1

The phrase that unlocked my appointment was asking what specifically she wanted me to watch for. It moved us from reassurance to a plan in about thirty seconds.

13me too 2

SunilFacilitatorBirmingham, UK
#2

Two things, both boring. First, none of us can tell you what to take. Second, the conversation you want to have is with your prescriber, and we can help you write it down.

18

Ollie OPeterhead, UK
#3

I keep a two-line diary and it is the only reason I could answer this question about myself. Worth starting even now.

10

TemSouthend, UK
#4

the reply above said something I want to sit with for a second.

No advice, just recognition. That sounds exhausting and I am sorry you are in it.

8

TamsinRedruth, UK
#5

My pharmacist was more use than anyone. Ten minutes at the counter, no appointment, no charge.

12

SaskiaThe Hague, NL
#6

the reply above — yes, and the bit that took me longest to accept was the next part.

Can I gently push back on one thing? Not the substance, just the framing — you have written twice that you should be coping better. Who told you that?

5

NolCork, IE
#7

Reading the reply above, I recognised more of that than I expected to.

Yes to the burping. It is real, it is unbeautiful, and it does settle.

9

ShadeIbadan, NG
#8

I am about four months behind you and I have been dreading exactly this, so thank you for writing it down before I got there.

9

OsipTbilisi, GE
#9

Building on what the reply above wrote rather than answering the original question.

For what it is worth, the trial data on this is thinner than the confidence of the internet would suggest. Worth knowing when you read the posts.

7

LucasSão Paulo, BR
#10

It got worse before it got better for me, which I wish someone had said. About ten days of worse.

13

GittaBonn, DE
#11

Have you got anyone who can be with you when you do it? It made an enormous difference to me and I felt silly asking.

7

GwionBangor, UK
#12

The thing that changed it for me was going slower, agreed with my prescriber. I am not suggesting you do that. I am saying the conversation exists.

9

BramberSteyning, UK
#13

I did exactly the same and felt terrible about it. You have not done anything wrong.

6me too 6

NylaNairobi, KE
#14

What the reply above described happened to me too, in a slightly different order.

Practical, boring answer: write the three questions down before you go in. I have never once remembered them otherwise.

13

SunilFacilitatorBirmingham, UK
#15

the reply above said something I want to sit with for a second.

I want to slow this down a little. There are four different answers flying about and they are all somebody's real experience, which makes them true and not necessarily relevant to the person who asked.

15

PerrinNice, FR
#16

Coming back to this a fortnight later to say it settled. Leaving the update because I hate reading threads that stop.

10