A peer support community, independent and not for sale. Since February 2024.

GLP CircleA peer support community

Thyroid

Graves' disease, in remission, and starting treatment

Started 1 September 2025 · 13 replies · 118 hearts · read 2.4k times

LlianCarmarthen, UK · 1 September 2025
11 months ago

Graves' disease, in remission, and starting treatment Writing it down partly to work out what I actually think.

Before anyone says it: yes, I have an appointment booked. I would still like to hear from people who have had this.

I am aware some of this may be nothing. I would still like to know whether other people have had it, because I have spent a fortnight assuming I am the only one.

I have written down what has actually happened, in order, because I find that more useful than my summary of it.

Anyway. Thank you for reading this far. Any experience gratefully received, and I promise to come back and say what happened.

39

ÖzlemIzmir, TR
#1

I am about four months behind you and I have been dreading exactly this, so thank you for writing it down before I got there.

10

TansyLudlow, UK
#2

Yes to the burping. It is real, it is unbeautiful, and it does settle.

7

GrizelKirkcaldy, UK
#3

It got worse before it got better for me, which I wish someone had said. About ten days of worse.

8

MiraFacilitatorRotterdam, Netherlands
#4

If any of this has landed close to home for you while reading, our support resources page lists the kinds of services worth finding. No obligation and no drama.

14me too 6

PrueChester, UK
#5

No advice, just recognition. That sounds exhausting and I am sorry you are in it.

7

PersisBristol, UK
#6

What the reply above described happened to me too, in a slightly different order.

I keep a two-line diary and it is the only reason I could answer this question about myself. Worth starting even now.

12

BryonyMalvern, UK
#7

Gently disagreeing with the reply above, or rather adding the other half of it.

Can I gently push back on one thing? Not the substance, just the framing — you have written twice that you should be coping better. Who told you that?

9me too 2

GusStirling, UK
#8

My pharmacist was more use than anyone. Ten minutes at the counter, no appointment, no charge.

10

PerlaManila, PH
#9

Two things that helped me, neither of them clever: small amounts more often, and drinking a lot more than felt necessary.

9

Bryn MNeath, UK
#10

I would take that to a clinician rather than to us, and I would do it this week. Not because it is definitely serious — because it is the sort of thing that is much easier to rule out than to worry about.

6

PerryCardigan, UK
#11

Practical, boring answer: write the three questions down before you go in. I have never once remembered them otherwise.

7

MiraFacilitatorRotterdam, Netherlands
#12

Two things, both boring. First, none of us can tell you what to take. Second, the conversation you want to have is with your prescriber, and we can help you write it down.

10

MaudGhent, BE
#13

Building on what the reply above wrote rather than answering the original question.

The thing that changed it for me was going slower, agreed with my prescriber. I am not suggesting you do that. I am saying the conversation exists.

9me too 3