Manila family meals and adjusting kindly

Coming back to this a fortnight later to say it settled. Leaving the update because I hate reading threads that stop.

Reading the opening post, I recognised more of that than I expected to.

I am the person who had the frightening version of this. I went in, it was investigated, and it was not what anyone feared. Going in is the whole of my advice.

Practical, boring answer: write the three questions down before you go in. I have never once remembered them otherwise.

Have you got anyone who can be with you when you do it? It made an enormous difference to me and I felt silly asking.

The thing that changed it for me was going slower, agreed with my prescriber. I am not suggesting you do that. I am saying the conversation exists.

For what it is worth, the trial data on this is thinner than the confidence of the internet would suggest. Worth knowing when you read the posts.

Mine lasted about seven weeks and then lifted over a few days. I cannot tell you why. I can tell you it lifted.

I asked my nurse the same question and she said something I have repeated ever since: that the aim is to keep you on treatment, not to get you up the schedule.

Building on what the reply above wrote rather than answering the original question.

I have been in this circle a year and this question comes round every few months. It is not a silly question. It is the question.

Similar here, and mine turned out to be a completely unrelated deficiency picked up on bloods.

What helped was lowering my own expectations of the week rather than trying to hold the week together.