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eGFR moved and I panicked unnecessarily

Started 15 March 2025 · 17 replies · 176 hearts · read 3k times

BirdieMargate, UK · 15 March 2025
1.3 years ago

Something I have been sitting with: eGFR moved and I panicked unnecessarily Not looking for advice so much as other people's experience.

Putting this here because I do not want to be sold anything, I want to know what is actually established.

What I would find most useful is not advice. It is somebody describing what their version of this was, and how long it went on for.

My prescriber has been fine, genuinely. The problem is that I get nine minutes twice a year and there is no version of nine minutes that covers this.

Not looking for a plan. Just company and whatever anyone has found.

59

StellanMalmö, SE
#1

Coming back to this a fortnight later to say it settled. Leaving the update because I hate reading threads that stop.

9

MiraFacilitatorRotterdam, Netherlands
#2

Noticing out loud that this conversation has drifted into comparison. That happens without anyone intending it and it does not help anyone. Let us come back to the person who asked.

22

CassWakefield, UK
#3

Gently disagreeing with the reply above, or rather adding the other half of it.

I did exactly the same and felt terrible about it. You have not done anything wrong.

7

HeddaCopenhagen, DK
#4

Practical, boring answer: write the three questions down before you go in. I have never once remembered them otherwise.

10

LucasSão Paulo, BR
#5

the reply above said something I want to sit with for a second.

Have you got anyone who can be with you when you do it? It made an enormous difference to me and I felt silly asking.

5me too 4

MaryamBirmingham, UK
#6

The thing that changed it for me was going slower, agreed with my prescriber. I am not suggesting you do that. I am saying the conversation exists.

12

TobySwindon, UK
#7

It got worse before it got better for me, which I wish someone had said. About ten days of worse.

7

VivLuton, UK
#8

Building on what the reply above wrote rather than answering the original question.

For what it is worth, the trial data on this is thinner than the confidence of the internet would suggest. Worth knowing when you read the posts.

9

EsmeAix-en-Provence, FR
#9

I am about four months behind you and I have been dreading exactly this, so thank you for writing it down before I got there.

5

TaviaPalermo, IT
#10

Reading the reply above, I recognised more of that than I expected to.

Yes to the burping. It is real, it is unbeautiful, and it does settle.

7me too 9

IdaRotterdam, NL
#11

What helped was lowering my own expectations of the week rather than trying to hold the week together.

10me too 8

SadieSalford, UK
#12

Gently disagreeing with the reply above, or rather adding the other half of it.

My experience was very boring, which I offer as data. Some of us just get a dull time of it.

13

JuniperMachynlleth, UK
#13

Reading the reply above, I recognised more of that than I expected to.

I asked my nurse the same question and she said something I have repeated ever since: that the aim is to keep you on treatment, not to get you up the schedule.

11

OttolineEdinburgh, UK
#14

Please do not read the comments under news articles about this. I lost a fortnight to that.

4

ZebAustin, TX
#15

I am the person who had the frightening version of this. I went in, it was investigated, and it was not what anyone feared. Going in is the whole of my advice.

11

MiraFacilitatorRotterdam, Netherlands
#16

Thank you for writing this. I am not going to add information to it. I am going to say that what you have described is very common and very rarely said out loud.

24me too 4

NettieBarrow, UK
#17

Similar here, and mine turned out to be a completely unrelated deficiency picked up on bloods.

10