Cost with no coverage at all

Started 19 November 2025 · 19 replies · 156 hearts · read 1.6k times

TamsinRedruth, UK · 19 November 2025

8 months ago

Cost with no coverage at all — putting it in its own thread so it does not get lost in the check-in.

Anyone else here in my part of the world? I would like to compare notes.

I have read the guides here, which were more useful than anything else I have found, and I still have a question they do not cover.

The thing that has surprised me most is how much of this is about other people rather than about me.

My prescriber has been fine, genuinely. The problem is that I get nine minutes twice a year and there is no version of nine minutes that covers this.

Not looking for a plan. Just company and whatever anyone has found.

IvorLlanelli, UK

I have been in this circle a year and this question comes round every few months. It is not a silly question. It is the question.

5me too 2

EsiFacilitatorToronto, Canada

the opening post said something I want to sit with for a second.

Gently: you have apologised three times in a post where you have done nothing that requires an apology.

KaiVancouver, CA

I asked my nurse the same question and she said something I have repeated ever since: that the aim is to keep you on treatment, not to get you up the schedule.

NadjaBelgrade, RS

Please do not read the comments under news articles about this. I lost a fortnight to that.

MargueriteQuebec City, CA

Building on what the reply above wrote rather than answering the original question.

What helped was lowering my own expectations of the week rather than trying to hold the week together.

AurelBucharest, RO

My experience was very boring, which I offer as data. Some of us just get a dull time of it.

XanBerlin, DE

I am the person who had the frightening version of this. I went in, it was investigated, and it was not what anyone feared. Going in is the whole of my advice.

MapleToronto, CA

the reply above said something I want to sit with for a second.

Coming back to this a fortnight later to say it settled. Leaving the update because I hate reading threads that stop.

12me too 6

OrrinGlasgow, UK

Building on what the reply above wrote rather than answering the original question.

Practical, boring answer: write the three questions down before you go in. I have never once remembered them otherwise.

BassCoventry, UK

#10

I did exactly the same and felt terrible about it. You have not done anything wrong.

OrphBath, UK

#11

Two things that helped me, neither of them clever: small amounts more often, and drinking a lot more than felt necessary.

OrvalWinnipeg, CA

#12

I would take that to a clinician rather than to us, and I would do it this week. Not because it is definitely serious — because it is the sort of thing that is much easier to rule out than to worry about.

7me too 7

TamsinRedruth, UK

#13

the reply above said something I want to sit with for a second.

Yes. All of this. I had the same in my third month and I remember thinking there was something specifically wrong with me, which there was not.

IvorLlanelli, UK

#14

Mine lasted about seven weeks and then lifted over a few days. I cannot tell you why. I can tell you it lifted.

NolanHalifax, CA

#15

Gently disagreeing with the reply above, or rather adding the other half of it.

No advice, just recognition. That sounds exhausting and I am sorry you are in it.

KaiVancouver, CA

#16

I keep a two-line diary and it is the only reason I could answer this question about myself. Worth starting even now.

NadjaBelgrade, RS

#17

Different experience here, for balance. Mine did not improve and in the end I stopped, and that was the right call for me. Both outcomes exist.

EsiFacilitatorToronto, Canada

#18

Building on what the reply above wrote rather than answering the original question.

Noticing out loud that this conversation has drifted into comparison. That happens without anyone intending it and it does not help anyone. Let us come back to the person who asked.

AurelBucharest, RO

#19

Gently disagreeing with the reply above, or rather adding the other half of it.

Similar here, and mine turned out to be a completely unrelated deficiency picked up on bloods.