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Something I have been sitting with: Two sets of medications, one dosette box Not looking for advice so much as other people's experience.
The logistics of this are defeating me more than the medicine is.
I have written down what has actually happened, in order, because I find that more useful than my summary of it.
The thing that has surprised me most is how much of this is about other people rather than about me.
Thanks all. Genuinely.
78
No advice, just recognition. That sounds exhausting and I am sorry you are in it.
9
What the opening post described happened to me too, in a slightly different order.
I keep a two-line diary and it is the only reason I could answer this question about myself. Worth starting even now.
12
Thank you for writing this. I am not going to add information to it. I am going to say that what you have described is very common and very rarely said out loud.
15
The phrase that unlocked my appointment was asking what specifically she wanted me to watch for. It moved us from reassurance to a plan in about thirty seconds.
10
the reply above — yes, and the bit that took me longest to accept was the next part.
I am about four months behind you and I have been dreading exactly this, so thank you for writing it down before I got there.
11
Yes to the burping. It is real, it is unbeautiful, and it does settle.
13
Can I gently push back on one thing? Not the substance, just the framing — you have written twice that you should be coping better. Who told you that?
8
Reading the reply above, I recognised more of that than I expected to.
My pharmacist was more use than anyone. Ten minutes at the counter, no appointment, no charge.
11me too 4
Similar here, and mine turned out to be a completely unrelated deficiency picked up on bloods.
11
I have been in this circle a year and this question comes round every few months. It is not a silly question. It is the question.
13
It got worse before it got better for me, which I wish someone had said. About ten days of worse.
10
Different experience here, for balance. Mine did not improve and in the end I stopped, and that was the right call for me. Both outcomes exist.
14
For what it is worth, the trial data on this is thinner than the confidence of the internet would suggest. Worth knowing when you read the posts.
11
Gently disagreeing with the reply above, or rather adding the other half of it.
Have you got anyone who can be with you when you do it? It made an enormous difference to me and I felt silly asking.
11me too 9
The thing that changed it for me was going slower, agreed with my prescriber. I am not suggesting you do that. I am saying the conversation exists.
9
the reply above — yes, and the bit that took me longest to accept was the next part.
I did exactly the same and felt terrible about it. You have not done anything wrong.
13
What the reply above described happened to me too, in a slightly different order.
Practical, boring answer: write the three questions down before you go in. I have never once remembered them otherwise.
12me too 4
Coming back to this a fortnight later to say it settled. Leaving the update because I hate reading threads that stop.
5
I will leave this open for a few more days and then add it to the circle's resources, because the answers here are better than anything I would have written.
26
Gently disagreeing with the reply above, or rather adding the other half of it.
I am the person who had the frightening version of this. I went in, it was investigated, and it was not what anyone feared. Going in is the whole of my advice.
10me too 3