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The near-miss thread I keep sending people

Started 15 October 2024 · 20 replies · 252 hearts · read 3.5k times

MaeveSligo, IE · 15 October 2024
1.8 years ago

Something I have been sitting with: The near-miss thread I keep sending people Not looking for advice so much as other people's experience.

I have a letter in front of me and I do not know what it actually says.

I have read the guides here, which were more useful than anything else I have found, and I still have a question they do not cover.

What I keep tripping on is not the physical bit. It is the not knowing whether what I am experiencing is normal, and having nobody to ask who is not either selling something or frightened for me.

My prescriber has been fine, genuinely. The problem is that I get nine minutes twice a year and there is no version of nine minutes that covers this.

Sorry for the length. If anyone has been here, I would very much like to hear it.

84

NúriaBarcelona, ES
#1

For what it is worth, the trial data on this is thinner than the confidence of the internet would suggest. Worth knowing when you read the posts.

13

RuaridhFort William, UK
#2

It got worse before it got better for me, which I wish someone had said. About ten days of worse.

10me too 3

DevManchester, UK
#3

Yes to the burping. It is real, it is unbeautiful, and it does settle.

11

PetraFacilitatorMelbourne, Australia
#4

the opening post said something I want to sit with for a second.

I want to slow this down a little. There are four different answers flying about and they are all somebody's real experience, which makes them true and not necessarily relevant to the person who asked.

16

SunnivaBodø, NO
#5

My pharmacist was more use than anyone. Ten minutes at the counter, no appointment, no charge.

14me too 7

XanBerlin, DE
#6

Can I gently push back on one thing? Not the substance, just the framing — you have written twice that you should be coping better. Who told you that?

11

AurelBucharest, RO
#7

Building on what the reply above wrote rather than answering the original question.

I keep a two-line diary and it is the only reason I could answer this question about myself. Worth starting even now.

12

OrlaithDonegal, IE
#8

No advice, just recognition. That sounds exhausting and I am sorry you are in it.

9

BoazHaarlem, NL
#9

The phrase that unlocked my appointment was asking what specifically she wanted me to watch for. It moved us from reassurance to a plan in about thirty seconds.

14

MaeveSligo, IE
#10

Different experience here, for balance. Mine did not improve and in the end I stopped, and that was the right call for me. Both outcomes exist.

12

NúriaBarcelona, ES
#11

Yes. All of this. I had the same in my third month and I remember thinking there was something specifically wrong with me, which there was not.

8

RuaridhFort William, UK
#12

Mine lasted about seven weeks and then lifted over a few days. I cannot tell you why. I can tell you it lifted.

11me too 2

DevManchester, UK
#13

Gently disagreeing with the reply above, or rather adding the other half of it.

Similar here, and mine turned out to be a completely unrelated deficiency picked up on bloods.

9

SaskiaThe Hague, NL
#14

I have been in this circle a year and this question comes round every few months. It is not a silly question. It is the question.

12

SunnivaBodø, NO
#15

the reply above — yes, and the bit that took me longest to accept was the next part.

I am about four months behind you and I have been dreading exactly this, so thank you for writing it down before I got there.

12

XanBerlin, DE
#16

Have you got anyone who can be with you when you do it? It made an enormous difference to me and I felt silly asking.

15

AurelBucharest, RO
#17

Two things that helped me, neither of them clever: small amounts more often, and drinking a lot more than felt necessary.

10

OrlaithDonegal, IE
#18

What the reply above described happened to me too, in a slightly different order.

I would take that to a clinician rather than to us, and I would do it this week. Not because it is definitely serious — because it is the sort of thing that is much easier to rule out than to worry about.

13

PetraFacilitatorMelbourne, Australia
#19

the reply above — yes, and the bit that took me longest to accept was the next part.

Thank you for writing this. I am not going to add information to it. I am going to say that what you have described is very common and very rarely said out loud.

31

MaeveSligo, IE
#20

I am the person who had the frightening version of this. I went in, it was investigated, and it was not what anyone feared. Going in is the whole of my advice.

9