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German prescribing and the Kassenrezept question

Started 17 December 2024 · 24 replies · 269 hearts · read 5.3k times

LinneaTurku, FI · 17 December 2024
1.6 years ago

Something I have been sitting with: German prescribing and the Kassenrezept question Not looking for advice so much as other people's experience.

Regional question, because I have read a great deal of advice that turns out to be true in one country only.

Here is where I am. The medication side has been more or less as described, and the part nobody prepared me for is everything around it: what to say to people, how to plan a week, and how to tell the difference between a thing to endure and a thing to raise.

I am aware some of this may be nothing. I would still like to know whether other people have had it, because I have spent a fortnight assuming I am the only one.

Sorry for the length. If anyone has been here, I would very much like to hear it.

90

HéloïseGeneva, CH
#1

Coming back to this a fortnight later to say it settled. Leaving the update because I hate reading threads that stop.

9

Before anyone offers a remedy: what has been described here is on the list of things that need a clinician today rather than a thread. I am going to be firm about that, kindly.

24

OmarAmman, JO
#3

My experience was very boring, which I offer as data. Some of us just get a dull time of it.

10

NellaUtrecht, NL
#4

What the reply above described happened to me too, in a slightly different order.

What helped was lowering my own expectations of the week rather than trying to hold the week together.

12me too 4

IdaRotterdam, NL
#5

Please do not read the comments under news articles about this. I lost a fortnight to that.

12me too 3

ClémenceNantes, FR
#6

What the reply above described happened to me too, in a slightly different order.

I asked my nurse the same question and she said something I have repeated ever since: that the aim is to keep you on treatment, not to get you up the schedule.

8

GittaBonn, DE
#7

Gently disagreeing with the reply above, or rather adding the other half of it.

Similar here, and mine turned out to be a completely unrelated deficiency picked up on bloods.

12

ZenBristol, UK
#8

I have been in this circle a year and this question comes round every few months. It is not a silly question. It is the question.

7

LeniLeipzig, DE
#9

Gently disagreeing with the reply above, or rather adding the other half of it.

I am about four months behind you and I have been dreading exactly this, so thank you for writing it down before I got there.

9

NolwennRennes, FR
#10

Yes to the burping. It is real, it is unbeautiful, and it does settle.

12

PersisBristol, UK
#11

Mine lasted about seven weeks and then lifted over a few days. I cannot tell you why. I can tell you it lifted.

12

MaudGhent, BE
#12

Gently disagreeing with the reply above, or rather adding the other half of it.

Yes. All of this. I had the same in my third month and I remember thinking there was something specifically wrong with me, which there was not.

10me too 8

SaraOslo, NO
#13

Two things that helped me, neither of them clever: small amounts more often, and drinking a lot more than felt necessary.

11

AbramAmsterdam, NL
#14

I would take that to a clinician rather than to us, and I would do it this week. Not because it is definitely serious — because it is the sort of thing that is much easier to rule out than to worry about.

9

XanBerlin, DE
#15

The phrase that unlocked my appointment was asking what specifically she wanted me to watch for. It moved us from reassurance to a plan in about thirty seconds.

10me too 3

PolaGdańsk, PL
#16

Different experience here, for balance. Mine did not improve and in the end I stopped, and that was the right call for me. Both outcomes exist.

12

PerrineStrasbourg, FR
#17

Reading the reply above, I recognised more of that than I expected to.

No advice, just recognition. That sounds exhausting and I am sorry you are in it.

8

TacitaRome, IT
#18

I keep a two-line diary and it is the only reason I could answer this question about myself. Worth starting even now.

12

TheaBergen, NO
#19

I am the person who had the frightening version of this. I went in, it was investigated, and it was not what anyone feared. Going in is the whole of my advice.

13

BramGhent, BE
#20

Can I gently push back on one thing? Not the substance, just the framing — you have written twice that you should be coping better. Who told you that?

6

EsmeAix-en-Provence, FR
#21

My pharmacist was more use than anyone. Ten minutes at the counter, no appointment, no charge.

12

MaritGroningen, NL
#22

Building on what the reply above wrote rather than answering the original question.

It got worse before it got better for me, which I wish someone had said. About ten days of worse.

7

Gently disagreeing with the reply above, or rather adding the other half of it.

Gently: you have apologised three times in a post where you have done nothing that requires an apology.

22

LandoLeeds, UK
#24

For what it is worth, the trial data on this is thinner than the confidence of the internet would suggest. Worth knowing when you read the posts.

10me too 4