Cost in Poland versus cost in Ireland

Started 8 December 2024 · 22 replies · 250 hearts · read 2.2k times

TacitaRome, IT · 8 December 2024

1.6 years ago

A question rather than an update: Cost in Poland versus cost in Ireland

Regional question, because I have read a great deal of advice that turns out to be true in one country only.

I am aware some of this may be nothing. I would still like to know whether other people have had it, because I have spent a fortnight assuming I am the only one.

My prescriber has been fine, genuinely. The problem is that I get nine minutes twice a year and there is no version of nine minutes that covers this.

Sorry for the length. If anyone has been here, I would very much like to hear it.

AnnaAthens, GR

Please do not read the comments under news articles about this. I lost a fortnight to that.

13me too 4

NoorFacilitatorSingapore

I will leave this open for a few more days and then add it to the circle's resources, because the answers here are better than anything I would have written.

XanBerlin, DE

Similar here, and mine turned out to be a completely unrelated deficiency picked up on bloods.

OttoPrague, CZ

What the reply above described happened to me too, in a slightly different order.

I have been in this circle a year and this question comes round every few months. It is not a silly question. It is the question.

LinneaTurku, FI

Gently disagreeing with the reply above, or rather adding the other half of it.

Coming back to this a fortnight later to say it settled. Leaving the update because I hate reading threads that stop.

StellanMalmö, SE

I am the person who had the frightening version of this. I went in, it was investigated, and it was not what anyone feared. Going in is the whole of my advice.

PerrineStrasbourg, FR

My experience was very boring, which I offer as data. Some of us just get a dull time of it.

NellaUtrecht, NL

What helped was lowering my own expectations of the week rather than trying to hold the week together.

10me too 5

OmarAmman, JO

Have you got anyone who can be with you when you do it? It made an enormous difference to me and I felt silly asking.

NúriaBarcelona, ES

#10

What the reply above described happened to me too, in a slightly different order.

The thing that changed it for me was going slower, agreed with my prescriber. I am not suggesting you do that. I am saying the conversation exists.

GildaTrieste, IT

#11

Building on what the reply above wrote rather than answering the original question.

I asked my nurse the same question and she said something I have repeated ever since: that the aim is to keep you on treatment, not to get you up the schedule.

12me too 2

BertrandToulouse, FR

#12

Yes. All of this. I had the same in my third month and I remember thinking there was something specifically wrong with me, which there was not.

BodilÅlesund, NO

#13

Mine lasted about seven weeks and then lifted over a few days. I cannot tell you why. I can tell you it lifted.

CasperOdense, DK

#14

Gently disagreeing with the reply above, or rather adding the other half of it.

Two things that helped me, neither of them clever: small amounts more often, and drinking a lot more than felt necessary.

BoazHaarlem, NL

#15

I did exactly the same and felt terrible about it. You have not done anything wrong.

NadjaBelgrade, RS

#16

Practical, boring answer: write the three questions down before you go in. I have never once remembered them otherwise.

13me too 7

EsmeAix-en-Provence, FR

#17

What the reply above described happened to me too, in a slightly different order.

For what it is worth, the trial data on this is thinner than the confidence of the internet would suggest. Worth knowing when you read the posts.

TobiasHamburg, DE

#18

It got worse before it got better for me, which I wish someone had said. About ten days of worse.

IlseMaastricht, NL

#19

The phrase that unlocked my appointment was asking what specifically she wanted me to watch for. It moved us from reassurance to a plan in about thirty seconds.

PerrinNice, FR

#20

the reply above said something I want to sit with for a second.

Different experience here, for balance. Mine did not improve and in the end I stopped, and that was the right call for me. Both outcomes exist.

NoorFacilitatorSingapore

#21

Gently disagreeing with the reply above, or rather adding the other half of it.

Two things, both boring. First, none of us can tell you what to take. Second, the conversation you want to have is with your prescriber, and we can help you write it down.

BibiRabat, MA

#22

I would take that to a clinician rather than to us, and I would do it this week. Not because it is definitely serious — because it is the sort of thing that is much easier to rule out than to worry about.

10me too 8