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What my consultant wanted monitored

Started 15 September 2025 · 18 replies · 171 hearts · read 1.5k times

NoraDublin, IE · 15 September 2025
10 months ago

Something I have been sitting with: What my consultant wanted monitored Not looking for advice so much as other people's experience.

I have avoided asking about this for six weeks out of pure embarrassment.

I have read the guides here, which were more useful than anything else I have found, and I still have a question they do not cover.

What I would find most useful is not advice. It is somebody describing what their version of this was, and how long it went on for.

The thing that has surprised me most is how much of this is about other people rather than about me.

Anyway. Thank you for reading this far. Any experience gratefully received, and I promise to come back and say what happened.

57

EphraimBrooklyn, NY
#1

I asked my nurse the same question and she said something I have repeated ever since: that the aim is to keep you on treatment, not to get you up the schedule.

12

BramberSteyning, UK
#2

Please do not read the comments under news articles about this. I lost a fortnight to that.

10

TomásFacilitatorLisbon, Portugal
#3

Noticing out loud that this conversation has drifted into comparison. That happens without anyone intending it and it does not help anyone. Let us come back to the person who asked.

20me too 7

BrackenHexham, UK
#4

the opening post said something I want to sit with for a second.

My experience was very boring, which I offer as data. Some of us just get a dull time of it.

9

BettinaGraz, AT
#5

I am the person who had the frightening version of this. I went in, it was investigated, and it was not what anyone feared. Going in is the whole of my advice.

7

ÖzlemIzmir, TR
#6

Coming back to this a fortnight later to say it settled. Leaving the update because I hate reading threads that stop.

11

NyalaAddis Ababa, ET
#7

Building on what the reply above wrote rather than answering the original question.

Practical, boring answer: write the three questions down before you go in. I have never once remembered them otherwise.

4

GethinMerthyr Tydfil, UK
#8

I did exactly the same and felt terrible about it. You have not done anything wrong.

9

PosyChichester, UK
#9

The thing that changed it for me was going slower, agreed with my prescriber. I am not suggesting you do that. I am saying the conversation exists.

5

BibiRabat, MA
#10

Have you got anyone who can be with you when you do it? It made an enormous difference to me and I felt silly asking.

9me too 9

BryherIsles of Scilly, UK
#11

Gently disagreeing with the reply above, or rather adding the other half of it.

Two things that helped me, neither of them clever: small amounts more often, and drinking a lot more than felt necessary.

6

NoraDublin, IE
#12

I would take that to a clinician rather than to us, and I would do it this week. Not because it is definitely serious — because it is the sort of thing that is much easier to rule out than to worry about.

10

EphraimBrooklyn, NY
#13

Yes. All of this. I had the same in my third month and I remember thinking there was something specifically wrong with me, which there was not.

7me too 9

BramberSteyning, UK
#14

Building on what the reply above wrote rather than answering the original question.

Mine lasted about seven weeks and then lifted over a few days. I cannot tell you why. I can tell you it lifted.

9

AleksLjubljana, SI
#15

No advice, just recognition. That sounds exhausting and I am sorry you are in it.

10

BrackenHexham, UK
#16

What the reply above described happened to me too, in a slightly different order.

I keep a two-line diary and it is the only reason I could answer this question about myself. Worth starting even now.

11

TomásFacilitatorLisbon, Portugal
#17

I want to slow this down a little. There are four different answers flying about and they are all somebody's real experience, which makes them true and not necessarily relevant to the person who asked.

13

ÖzlemIzmir, TR
#18

The phrase that unlocked my appointment was asking what specifically she wanted me to watch for. It moved us from reassurance to a plan in about thirty seconds.

9me too 4