A peer support community, independent and not for sale. Since February 2024.
A question rather than an update: How I got my gastro team and my GP talking to each other
Squeamish subject, so I am going to be plain about it and get it over with.
I have written down what has actually happened, in order, because I find that more useful than my summary of it.
My prescriber has been fine, genuinely. The problem is that I get nine minutes twice a year and there is no version of nine minutes that covers this.
Thanks all. Genuinely.
83
Yes. All of this. I had the same in my third month and I remember thinking there was something specifically wrong with me, which there was not.
8
Mine lasted about seven weeks and then lifted over a few days. I cannot tell you why. I can tell you it lifted.
11me too 2
Thank you for writing this. I am not going to add information to it. I am going to say that what you have described is very common and very rarely said out loud.
14
Building on what the reply above wrote rather than answering the original question.
I have been in this circle a year and this question comes round every few months. It is not a silly question. It is the question.
9
Different experience here, for balance. Mine did not improve and in the end I stopped, and that was the right call for me. Both outcomes exist.
10me too 8
The phrase that unlocked my appointment was asking what specifically she wanted me to watch for. It moved us from reassurance to a plan in about thirty seconds.
12
Gently disagreeing with the reply above, or rather adding the other half of it.
Two things that helped me, neither of them clever: small amounts more often, and drinking a lot more than felt necessary.
7
I would take that to a clinician rather than to us, and I would do it this week. Not because it is definitely serious — because it is the sort of thing that is much easier to rule out than to worry about.
10
Can I gently push back on one thing? Not the substance, just the framing — you have written twice that you should be coping better. Who told you that?
11
My pharmacist was more use than anyone. Ten minutes at the counter, no appointment, no charge.
11
Building on what the reply above wrote rather than answering the original question.
I am about four months behind you and I have been dreading exactly this, so thank you for writing it down before I got there.
11me too 9
Yes to the burping. It is real, it is unbeautiful, and it does settle.
9
It got worse before it got better for me, which I wish someone had said. About ten days of worse.
13
For what it is worth, the trial data on this is thinner than the confidence of the internet would suggest. Worth knowing when you read the posts.
10
Have you got anyone who can be with you when you do it? It made an enormous difference to me and I felt silly asking.
10
The thing that changed it for me was going slower, agreed with my prescriber. I am not suggesting you do that. I am saying the conversation exists.
7
I did exactly the same and felt terrible about it. You have not done anything wrong.
12
Gently disagreeing with the reply above, or rather adding the other half of it.
Practical, boring answer: write the three questions down before you go in. I have never once remembered them otherwise.
12me too 4
No advice, just recognition. That sounds exhausting and I am sorry you are in it.
15
Gently disagreeing with the reply above, or rather adding the other half of it.
I keep a two-line diary and it is the only reason I could answer this question about myself. Worth starting even now.
8
Coming back to this a fortnight later to say it settled. Leaving the update because I hate reading threads that stop.
11
What the reply above described happened to me too, in a slightly different order.
Before anyone offers a remedy: what has been described here is on the list of things that need a clinician today rather than a thread. I am going to be firm about that, kindly.
14
I am the person who had the frightening version of this. I went in, it was investigated, and it was not what anyone feared. Going in is the whole of my advice.
14