A peer support community, independent and not for sale. Since February 2024.

GLP CircleA peer support community

Hair shedding

Telling my partner why I was crying in the bathroom

Started 1 December 2025 · 13 replies · 114 hearts · read 1.4k times

FabianBasel, CH · 1 December 2025
8 months ago

Starting a thread on this because it keeps coming up in ones and twos: Telling my partner why I was crying in the bathroom

Something is going on with my body and I would like to know whether it is ordinary.

The thing that has surprised me most is how much of this is about other people rather than about me.

Here is where I am. The medication side has been more or less as described, and the part nobody prepared me for is everything around it: what to say to people, how to plan a week, and how to tell the difference between a thing to endure and a thing to raise.

My prescriber has been fine, genuinely. The problem is that I get nine minutes twice a year and there is no version of nine minutes that covers this.

Anyway. Thank you for reading this far. Any experience gratefully received, and I promise to come back and say what happened.

38

OsmanAnkara, TR
#1

The thing that changed it for me was going slower, agreed with my prescriber. I am not suggesting you do that. I am saying the conversation exists.

10

NyreeChristchurch, NZ
#2

Have you got anyone who can be with you when you do it? It made an enormous difference to me and I felt silly asking.

9

AdaFacilitatorManchester, UK
#3

Before anyone offers a remedy: what has been described here is on the list of things that need a clinician today rather than a thread. I am going to be firm about that, kindly.

20me too 5

MargueriteQuebec City, CA
#4

the reply above said something I want to sit with for a second.

I did exactly the same and felt terrible about it. You have not done anything wrong.

7

DillyNewport, UK
#5

What the reply above described happened to me too, in a slightly different order.

Yes to the burping. It is real, it is unbeautiful, and it does settle.

6

OttoPrague, CZ
#6

I am about four months behind you and I have been dreading exactly this, so thank you for writing it down before I got there.

9

AnnikaStockholm, SE
#7

For what it is worth, the trial data on this is thinner than the confidence of the internet would suggest. Worth knowing when you read the posts.

8

MairéadMayo, IE
#8

It got worse before it got better for me, which I wish someone had said. About ten days of worse.

6me too 1

PerrinNice, FR
#9

What the reply above described happened to me too, in a slightly different order.

I asked my nurse the same question and she said something I have repeated ever since: that the aim is to keep you on treatment, not to get you up the schedule.

7me too 2

GroverPortland, ME
#10

Please do not read the comments under news articles about this. I lost a fortnight to that.

5

BlySheffield, UK
#11

Practical, boring answer: write the three questions down before you go in. I have never once remembered them otherwise.

8

AdaFacilitatorManchester, UK
#12

Noticing out loud that this conversation has drifted into comparison. That happens without anyone intending it and it does not help anyone. Let us come back to the person who asked.

9

GudrunAkureyri, IS
#13

Coming back to this a fortnight later to say it settled. Leaving the update because I hate reading threads that stop.

10