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Hair shedding

It never came back the same and I have made peace with it

Started 8 August 2025 · 12 replies · 122 hearts · read 2.4k times

NyalaAddis Ababa, ET · 8 August 2025
11 months ago

Starting a thread on this because it keeps coming up in ones and twos: It never came back the same and I have made peace with it

Something is going on with my body and I would like to know whether it is ordinary.

The thing that has surprised me most is how much of this is about other people rather than about me.

What I keep tripping on is not the physical bit. It is the not knowing whether what I am experiencing is normal, and having nobody to ask who is not either selling something or frightened for me.

I will report back either way, because I have been helped by other people's follow-ups more than by their questions.

41

MairéadMayo, IE
#1

Practical, boring answer: write the three questions down before you go in. I have never once remembered them otherwise.

7

PerrinNice, FR
#2

I did exactly the same and felt terrible about it. You have not done anything wrong.

11

OttoPrague, CZ
#3

I am the person who had the frightening version of this. I went in, it was investigated, and it was not what anyone feared. Going in is the whole of my advice.

8

AdaFacilitatorManchester, UK
#4

the reply above — yes, and the bit that took me longest to accept was the next part.

Gently: you have apologised three times in a post where you have done nothing that requires an apology.

22

WystanCheltenham, UK
#5

Building on what the reply above wrote rather than answering the original question.

For what it is worth, the trial data on this is thinner than the confidence of the internet would suggest. Worth knowing when you read the posts.

8me too 5

AnnikaStockholm, SE
#6

It got worse before it got better for me, which I wish someone had said. About ten days of worse.

10

BlySheffield, UK
#7

The thing that changed it for me was going slower, agreed with my prescriber. I am not suggesting you do that. I am saying the conversation exists.

9

WinnieCarlisle, UK
#8

Have you got anyone who can be with you when you do it? It made an enormous difference to me and I felt silly asking.

7

MargueriteQuebec City, CA
#9

Building on what the reply above wrote rather than answering the original question.

I have been in this circle a year and this question comes round every few months. It is not a silly question. It is the question.

8

DillyNewport, UK
#10

Similar here, and mine turned out to be a completely unrelated deficiency picked up on bloods.

7

AdaFacilitatorManchester, UK
#11

I want to slow this down a little. There are four different answers flying about and they are all somebody's real experience, which makes them true and not necessarily relevant to the person who asked.

19

GudrunAkureyri, IS
#12

My experience was very boring, which I offer as data. Some of us just get a dull time of it.

6