Was it the medication or the rate of change

Started 31 December 2024 · 13 replies · 153 hearts · read 3k times

GudrunAkureyri, IS · 31 December 2024

1.6 years ago

A question rather than an update: Was it the medication or the rate of change

Something is going on with my body and I would like to know whether it is ordinary.

The thing that has surprised me most is how much of this is about other people rather than about me.

I am aware some of this may be nothing. I would still like to know whether other people have had it, because I have spent a fortnight assuming I am the only one.

My prescriber has been fine, genuinely. The problem is that I get nine minutes twice a year and there is no version of nine minutes that covers this.

Anyway. Thank you for reading this far. Any experience gratefully received, and I promise to come back and say what happened.

WinnieCarlisle, UK

What helped was lowering my own expectations of the week rather than trying to hold the week together.

NyreeChristchurch, NZ

My experience was very boring, which I offer as data. Some of us just get a dull time of it.

NyalaAddis Ababa, ET

I asked my nurse the same question and she said something I have repeated ever since: that the aim is to keep you on treatment, not to get you up the schedule.

15me too 4

AdaFacilitatorManchester, UK

Gently: you have apologised three times in a post where you have done nothing that requires an apology.

AnnikaStockholm, SE

Practical, boring answer: write the three questions down before you go in. I have never once remembered them otherwise.

IkeChicago, IL

Gently disagreeing with the reply above, or rather adding the other half of it.

I did exactly the same and felt terrible about it. You have not done anything wrong.

EphraimBrooklyn, NY

What the reply above described happened to me too, in a slightly different order.

I am the person who had the frightening version of this. I went in, it was investigated, and it was not what anyone feared. Going in is the whole of my advice.

OttoPrague, CZ

Coming back to this a fortnight later to say it settled. Leaving the update because I hate reading threads that stop.

9me too 9

WystanCheltenham, UK

For what it is worth, the trial data on this is thinner than the confidence of the internet would suggest. Worth knowing when you read the posts.

CoralieMarseille, FR

#10

It got worse before it got better for me, which I wish someone had said. About ten days of worse.

DillyNewport, UK

#11

Yes. All of this. I had the same in my third month and I remember thinking there was something specifically wrong with me, which there was not.

AdaFacilitatorManchester, UK

#12

Reading the reply above, I recognised more of that than I expected to.

Noticing out loud that this conversation has drifted into comparison. That happens without anyone intending it and it does not help anyone. Let us come back to the person who asked.

FabianBasel, CH

#13

the reply above said something I want to sit with for a second.

Two things that helped me, neither of them clever: small amounts more often, and drinking a lot more than felt necessary.