Watching myself do it in a mirror helped, oddly

Started 2 June 2024 · 22 replies · 269 hearts · read 5.7k times

DelythBala, UK · 2 June 2024

2.1 years ago

Watching myself do it in a mirror helped, oddly — putting it in its own thread so it does not get lost in the check-in.

Something is going on with my body and I would like to know whether it is ordinary.

What I keep tripping on is not the physical bit. It is the not knowing whether what I am experiencing is normal, and having nobody to ask who is not either selling something or frightened for me.

What I would find most useful is not advice. It is somebody describing what their version of this was, and how long it went on for.

My prescriber has been fine, genuinely. The problem is that I get nine minutes twice a year and there is no version of nine minutes that covers this.

Thanks all. Genuinely.

BrodyDunfermline, UK

Practical, boring answer: write the three questions down before you go in. I have never once remembered them otherwise.

EsiFacilitatorToronto, Canada

Gently disagreeing with the opening post, or rather adding the other half of it.

Two things, both boring. First, none of us can tell you what to take. Second, the conversation you want to have is with your prescriber, and we can help you write it down.

TabbyMargate, UK

What the opening post described happened to me too, in a slightly different order.

I am the person who had the frightening version of this. I went in, it was investigated, and it was not what anyone feared. Going in is the whole of my advice.

10me too 8

OmarAmman, JO

Coming back to this a fortnight later to say it settled. Leaving the update because I hate reading threads that stop.

IslaOban, UK

Building on what the reply above wrote rather than answering the original question.

What helped was lowering my own expectations of the week rather than trying to hold the week together.

GwynforLlanidloes, UK

My experience was very boring, which I offer as data. Some of us just get a dull time of it.

13me too 3

TedIpswich, UK

I asked my nurse the same question and she said something I have repeated ever since: that the aim is to keep you on treatment, not to get you up the schedule.

SaraOslo, NO

Please do not read the comments under news articles about this. I lost a fortnight to that.

OttaviaBologna, IT

What the reply above described happened to me too, in a slightly different order.

My pharmacist was more use than anyone. Ten minutes at the counter, no appointment, no charge.

ZoëHackney, UK

#10

Can I gently push back on one thing? Not the substance, just the framing — you have written twice that you should be coping better. Who told you that?

NylaNairobi, KE

#11

I am about four months behind you and I have been dreading exactly this, so thank you for writing it down before I got there.

BrackAlnwick, UK

#12

Yes to the burping. It is real, it is unbeautiful, and it does settle.

NadirCasablanca, MA

#13

It got worse before it got better for me, which I wish someone had said. About ten days of worse.

13me too 5

SableCape Town, ZA

#14

Building on what the reply above wrote rather than answering the original question.

For what it is worth, the trial data on this is thinner than the confidence of the internet would suggest. Worth knowing when you read the posts.

IvesPenzance, UK

#15

the reply above — yes, and the bit that took me longest to accept was the next part.

Have you got anyone who can be with you when you do it? It made an enormous difference to me and I felt silly asking.

OrlaithDonegal, IE

#16

The thing that changed it for me was going slower, agreed with my prescriber. I am not suggesting you do that. I am saying the conversation exists.

GaelanInverurie, UK

#17

I did exactly the same and felt terrible about it. You have not done anything wrong.

Ozzy GWalsall, UK

#18

Similar here, and mine turned out to be a completely unrelated deficiency picked up on bloods.

7me too 8

CatoAntwerp, BE

#19

Two things that helped me, neither of them clever: small amounts more often, and drinking a lot more than felt necessary.

PerrineStrasbourg, FR

#20

Building on what the reply above wrote rather than answering the original question.

I would take that to a clinician rather than to us, and I would do it this week. Not because it is definitely serious — because it is the sort of thing that is much easier to rule out than to worry about.

EsiFacilitatorToronto, Canada

#21

If any of this has landed close to home for you while reading, our support resources page lists the kinds of services worth finding. No obligation and no drama.

BrodyDunfermline, UK

#22

the reply above — yes, and the bit that took me longest to accept was the next part.

No advice, just recognition. That sounds exhausting and I am sorry you are in it.