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Which criterion was I actually being measured against

Started 11 December 2024 · 24 replies · 287 hearts · read 4.5k times

ZebAustin, TX · 11 December 2024
1.6 years ago

Which criterion was I actually being measured against Writing it down partly to work out what I actually think.

I have a letter in front of me and I do not know what it actually says.

I have read the guides here, which were more useful than anything else I have found, and I still have a question they do not cover.

My prescriber has been fine, genuinely. The problem is that I get nine minutes twice a year and there is no version of nine minutes that covers this.

Thanks all. Genuinely.

96

BrimHalifax, UK
#1

For what it is worth, the trial data on this is thinner than the confidence of the internet would suggest. Worth knowing when you read the posts.

12

MoBradford, UK
#2

It got worse before it got better for me, which I wish someone had said. About ten days of worse.

10me too 6

WinkleWeymouth, UK
#3

What the opening post described happened to me too, in a slightly different order.

Yes to the burping. It is real, it is unbeautiful, and it does settle.

15

PetraFacilitatorMelbourne, Australia
#4

I want to slow this down a little. There are four different answers flying about and they are all somebody's real experience, which makes them true and not necessarily relevant to the person who asked.

19

TheaBergen, NO
#5

My pharmacist was more use than anyone. Ten minutes at the counter, no appointment, no charge.

9me too 1

ColNewquay, UK
#6

Gently disagreeing with the reply above, or rather adding the other half of it.

Can I gently push back on one thing? Not the substance, just the framing — you have written twice that you should be coping better. Who told you that?

11

GroverPortland, ME
#7

I keep a two-line diary and it is the only reason I could answer this question about myself. Worth starting even now.

7

FitzLimerick, IE
#8

No advice, just recognition. That sounds exhausting and I am sorry you are in it.

12

IdaRotterdam, NL
#9

What the reply above described happened to me too, in a slightly different order.

What helped was lowering my own expectations of the week rather than trying to hold the week together.

13

MarthaCork, IE
#10

My experience was very boring, which I offer as data. Some of us just get a dull time of it.

10

TiernanOmagh, NI
#11

I did exactly the same and felt terrible about it. You have not done anything wrong.

12

TarnKeswick, UK
#12

Practical, boring answer: write the three questions down before you go in. I have never once remembered them otherwise.

14

RayBarnsley, UK
#13

the reply above said something I want to sit with for a second.

I am about four months behind you and I have been dreading exactly this, so thank you for writing it down before I got there.

8

BodilÅlesund, NO
#14

Have you got anyone who can be with you when you do it? It made an enormous difference to me and I felt silly asking.

15me too 3

NkechiAbuja, NG
#15

Gently disagreeing with the reply above, or rather adding the other half of it.

Please do not read the comments under news articles about this. I lost a fortnight to that.

11me too 2

ZebAustin, TX
#16

I asked my nurse the same question and she said something I have repeated ever since: that the aim is to keep you on treatment, not to get you up the schedule.

6

BrimHalifax, UK
#17

Coming back to this a fortnight later to say it settled. Leaving the update because I hate reading threads that stop.

14

MoBradford, UK
#18

Building on what the reply above wrote rather than answering the original question.

I am the person who had the frightening version of this. I went in, it was investigated, and it was not what anyone feared. Going in is the whole of my advice.

9

WinkleWeymouth, UK
#19

Similar here, and mine turned out to be a completely unrelated deficiency picked up on bloods.

11

TasnimBradford, UK
#20

What the reply above described happened to me too, in a slightly different order.

I have been in this circle a year and this question comes round every few months. It is not a silly question. It is the question.

11

TheaBergen, NO
#21

What the reply above described happened to me too, in a slightly different order.

Mine lasted about seven weeks and then lifted over a few days. I cannot tell you why. I can tell you it lifted.

13me too 3

ColNewquay, UK
#22

Yes. All of this. I had the same in my third month and I remember thinking there was something specifically wrong with me, which there was not.

11

PetraFacilitatorMelbourne, Australia
#23

Noticing out loud that this conversation has drifted into comparison. That happens without anyone intending it and it does not help anyone. Let us come back to the person who asked.

25

FitzLimerick, IE
#24

Two things that helped me, neither of them clever: small amounts more often, and drinking a lot more than felt necessary.

9