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When did you stop thinking about it every day

Started 27 March 2026 · 10 replies · 66 hearts · read 800 times

IvesPenzance, UK · 27 March 2026
4 months ago

A question rather than an update: When did you stop thinking about it every day

Writing this partly to ask and partly because writing it down usually tells me what I think.

The thing that has surprised me most is how much of this is about other people rather than about me.

What I keep tripping on is not the physical bit. It is the not knowing whether what I am experiencing is normal, and having nobody to ask who is not either selling something or frightened for me.

Not looking for a plan. Just company and whatever anyone has found.

22

BexPlymouth, UK
#1

Mine lasted about seven weeks and then lifted over a few days. I cannot tell you why. I can tell you it lifted.

6me too 3

TarnKeswick, UK
#2

Yes. All of this. I had the same in my third month and I remember thinking there was something specifically wrong with me, which there was not.

5

PamSouthport, UK
#3

I would take that to a clinician rather than to us, and I would do it this week. Not because it is definitely serious — because it is the sort of thing that is much easier to rule out than to worry about.

9

BenediktFacilitatorVienna, Austria
#4

Gently: you have apologised three times in a post where you have done nothing that requires an apology.

14

RunaAarhus, DK
#5

I asked my nurse the same question and she said something I have repeated ever since: that the aim is to keep you on treatment, not to get you up the schedule.

2

EdwynNewcastle, UK
#6

Gently disagreeing with the reply above, or rather adding the other half of it.

Please do not read the comments under news articles about this. I lost a fortnight to that.

5me too 8

PriyaReading, UK
#7

What the reply above described happened to me too, in a slightly different order.

I have been in this circle a year and this question comes round every few months. It is not a silly question. It is the question.

4

TeganNewport, UK
#8

Similar here, and mine turned out to be a completely unrelated deficiency picked up on bloods.

7

BenediktFacilitatorVienna, Austria
#9

Noticing out loud that this conversation has drifted into comparison. That happens without anyone intending it and it does not help anyone. Let us come back to the person who asked.

9

LeniLeipzig, DE
#10

Coming back to this a fortnight later to say it settled. Leaving the update because I hate reading threads that stop.

5