I stopped because of this and I am back to try again

Started 8 April 2026 · 19 replies · 121 hearts · read 2.1k times

WinkleWeymouth, UK · 8 April 2026

3 months ago

I stopped because of this and I am back to try again Writing it down partly to work out what I actually think.

Squeamish subject, so I am going to be plain about it and get it over with.

I have written down what has actually happened, in order, because I find that more useful than my summary of it.

The thing that has surprised me most is how much of this is about other people rather than about me.

Anyway. Thank you for reading this far. Any experience gratefully received, and I promise to come back and say what happened.

Bryn MNeath, UK

I am about four months behind you and I have been dreading exactly this, so thank you for writing it down before I got there.

EsiFacilitatorToronto, Canada

Reading the opening post, I recognised more of that than I expected to.

If any of this has landed close to home for you while reading, our support resources page lists the kinds of services worth finding. No obligation and no drama.

PerrineStrasbourg, FR

Can I gently push back on one thing? Not the substance, just the framing — you have written twice that you should be coping better. Who told you that?

7me too 8

HéloïseGeneva, CH

My pharmacist was more use than anyone. Ten minutes at the counter, no appointment, no charge.

PietPretoria, ZA

the reply above said something I want to sit with for a second.

Have you got anyone who can be with you when you do it? It made an enormous difference to me and I felt silly asking.

BessLouth, UK

The thing that changed it for me was going slower, agreed with my prescriber. I am not suggesting you do that. I am saying the conversation exists.

6me too 1

BramwellRipon, UK

It got worse before it got better for me, which I wish someone had said. About ten days of worse.

BassCoventry, UK

Building on what the reply above wrote rather than answering the original question.

For what it is worth, the trial data on this is thinner than the confidence of the internet would suggest. Worth knowing when you read the posts.

Ollie OPeterhead, UK

the reply above — yes, and the bit that took me longest to accept was the next part.

Coming back to this a fortnight later to say it settled. Leaving the update because I hate reading threads that stop.

TaaviTallinn, EE

#10

I am the person who had the frightening version of this. I went in, it was investigated, and it was not what anyone feared. Going in is the whole of my advice.

BronLincoln, UK

#11

Reading the reply above, I recognised more of that than I expected to.

Yes to the burping. It is real, it is unbeautiful, and it does settle.

DelythBala, UK

#12

I did exactly the same and felt terrible about it. You have not done anything wrong.

TavitaApia, WS

#13

Practical, boring answer: write the three questions down before you go in. I have never once remembered them otherwise.

WinkleWeymouth, UK

#14

My experience was very boring, which I offer as data. Some of us just get a dull time of it.

Bryn MNeath, UK

#15

What helped was lowering my own expectations of the week rather than trying to hold the week together.

IslaOban, UK

#16

Please do not read the comments under news articles about this. I lost a fortnight to that.

6me too 6

PerrineStrasbourg, FR

#17

I asked my nurse the same question and she said something I have repeated ever since: that the aim is to keep you on treatment, not to get you up the schedule.

EsiFacilitatorToronto, Canada

#18

Gently disagreeing with the reply above, or rather adding the other half of it.

I want to slow this down a little. There are four different answers flying about and they are all somebody's real experience, which makes them true and not necessarily relevant to the person who asked.

PietPretoria, ZA

#19

I would take that to a clinician rather than to us, and I would do it this week. Not because it is definitely serious — because it is the sort of thing that is much easier to rule out than to worry about.

8me too 8