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Over 60

Being told at 68 that it was just age

Started 8 December 2024 · 22 replies · 244 hearts · read 4.7k times

OttilieCheshire, UK · 8 December 2024
1.6 years ago

Being told at 68 that it was just age — putting it in its own thread so it does not get lost in the check-in.

Anyone else navigating this? I feel as though every piece of advice I read was written for someone with a completely different week.

My prescriber has been fine, genuinely. The problem is that I get nine minutes twice a year and there is no version of nine minutes that covers this.

Here is where I am. The medication side has been more or less as described, and the part nobody prepared me for is everything around it: what to say to people, how to plan a week, and how to tell the difference between a thing to endure and a thing to raise.

The thing that has surprised me most is how much of this is about other people rather than about me.

Not looking for a plan. Just company and whatever anyone has found.

81

BrimHalifax, UK
#1

Yes to the burping. It is real, it is unbeautiful, and it does settle.

9

EdwynNewcastle, UK
#2

I am about four months behind you and I have been dreading exactly this, so thank you for writing it down before I got there.

13me too 7

RenFacilitatorBristol, UK
#3

If any of this has landed close to home for you while reading, our support resources page lists the kinds of services worth finding. No obligation and no drama.

13

OllyReading, UK
#4

Gently disagreeing with the opening post, or rather adding the other half of it.

Can I gently push back on one thing? Not the substance, just the framing — you have written twice that you should be coping better. Who told you that?

11

NikoTbilisi, GE
#5

The thing that changed it for me was going slower, agreed with my prescriber. I am not suggesting you do that. I am saying the conversation exists.

14

LucasSão Paulo, BR
#6

Gently disagreeing with the reply above, or rather adding the other half of it.

Have you got anyone who can be with you when you do it? It made an enormous difference to me and I felt silly asking.

12

BertrandToulouse, FR
#7

For what it is worth, the trial data on this is thinner than the confidence of the internet would suggest. Worth knowing when you read the posts.

13

PietPretoria, ZA
#8

It got worse before it got better for me, which I wish someone had said. About ten days of worse.

11

OttilieCheshire, UK
#9

I am the person who had the frightening version of this. I went in, it was investigated, and it was not what anyone feared. Going in is the whole of my advice.

11

BrimHalifax, UK
#10

Coming back to this a fortnight later to say it settled. Leaving the update because I hate reading threads that stop.

9

EdwynNewcastle, UK
#11

My experience was very boring, which I offer as data. Some of us just get a dull time of it.

7

OsmanAnkara, TR
#12

Building on what the reply above wrote rather than answering the original question.

What helped was lowering my own expectations of the week rather than trying to hold the week together.

14

OllyReading, UK
#13

Please do not read the comments under news articles about this. I lost a fortnight to that.

10

NikoTbilisi, GE
#14

I asked my nurse the same question and she said something I have repeated ever since: that the aim is to keep you on treatment, not to get you up the schedule.

11

LucasSão Paulo, BR
#15

the reply above said something I want to sit with for a second.

I did exactly the same and felt terrible about it. You have not done anything wrong.

6

BertrandToulouse, FR
#16

Practical, boring answer: write the three questions down before you go in. I have never once remembered them otherwise.

13me too 7

PietPretoria, ZA
#17

Similar here, and mine turned out to be a completely unrelated deficiency picked up on bloods.

9

OttilieCheshire, UK
#18

Reading the reply above, I recognised more of that than I expected to.

I have been in this circle a year and this question comes round every few months. It is not a silly question. It is the question.

12

BrimHalifax, UK
#19

the reply above said something I want to sit with for a second.

Two things that helped me, neither of them clever: small amounts more often, and drinking a lot more than felt necessary.

8me too 3

EdwynNewcastle, UK
#20

I would take that to a clinician rather than to us, and I would do it this week. Not because it is definitely serious — because it is the sort of thing that is much easier to rule out than to worry about.

10

I will leave this open for a few more days and then add it to the circle's resources, because the answers here are better than anything I would have written.

20

OllyReading, UK
#22

Gently disagreeing with the reply above, or rather adding the other half of it.

Yes. All of this. I had the same in my third month and I remember thinking there was something specifically wrong with me, which there was not.

8