My result went the wrong way despite everything

Started 4 October 2025 · 16 replies · 143 hearts · read 1.3k times

KaiVancouver, CA · 4 October 2025

10 months ago

My result went the wrong way despite everything — putting it in its own thread so it does not get lost in the check-in.

I have had this diagnosis for a long time and none of the general advice quite fits me.

I have written down what has actually happened, in order, because I find that more useful than my summary of it.

What I keep tripping on is not the physical bit. It is the not knowing whether what I am experiencing is normal, and having nobody to ask who is not either selling something or frightened for me.

Not looking for a plan. Just company and whatever anyone has found.

LilPreston, UK

Similar here, and mine turned out to be a completely unrelated deficiency picked up on bloods.

6me too 5

NellFrome, UK

I have been in this circle a year and this question comes round every few months. It is not a silly question. It is the question.

FenEly, UK

the reply above said something I want to sit with for a second.

Please do not read the comments under news articles about this. I lost a fortnight to that.

MiraFacilitatorRotterdam, Netherlands

I will leave this open for a few more days and then add it to the circle's resources, because the answers here are better than anything I would have written.

AshwinBengaluru, IN

Two things that helped me, neither of them clever: small amounts more often, and drinking a lot more than felt necessary.

LuPreston, UK

What the reply above described happened to me too, in a slightly different order.

I would take that to a clinician rather than to us, and I would do it this week. Not because it is definitely serious — because it is the sort of thing that is much easier to rule out than to worry about.

BirdieMargate, UK

Yes. All of this. I had the same in my third month and I remember thinking there was something specifically wrong with me, which there was not.

GethinMerthyr Tydfil, UK

Mine lasted about seven weeks and then lifted over a few days. I cannot tell you why. I can tell you it lifted.

OdileMontreal, CA

No advice, just recognition. That sounds exhausting and I am sorry you are in it.

SorayaTehran, IR

#10

Building on what the reply above wrote rather than answering the original question.

I keep a two-line diary and it is the only reason I could answer this question about myself. Worth starting even now.

NoahHull, UK

#11

What the reply above described happened to me too, in a slightly different order.

My pharmacist was more use than anyone. Ten minutes at the counter, no appointment, no charge.

TarqWindsor, UK

#12

Can I gently push back on one thing? Not the substance, just the framing — you have written twice that you should be coping better. Who told you that?

8me too 9

HarriSwansea, UK

#13

Yes to the burping. It is real, it is unbeautiful, and it does settle.

CallaWellington, NZ

#14

I am about four months behind you and I have been dreading exactly this, so thank you for writing it down before I got there.

MiraFacilitatorRotterdam, Netherlands

#15

Before anyone offers a remedy: what has been described here is on the list of things that need a clinician today rather than a thread. I am going to be firm about that, kindly.

ZebAustin, TX

#16

It got worse before it got better for me, which I wish someone had said. About ten days of worse.

11me too 5