Bone density, strength and a loss phase

Started 15 July 2024 · 20 replies · 233 hearts · read 4.6k times

RonanBelfast, NI · 15 July 2024

2 years ago

Starting a thread on this because it keeps coming up in ones and twos: Bone density, strength and a loss phase

The logistics of this are defeating me more than the medicine is.

The thing that has surprised me most is how much of this is about other people rather than about me.

I have read the guides here, which were more useful than anything else I have found, and I still have a question they do not cover.

What I keep tripping on is not the physical bit. It is the not knowing whether what I am experiencing is normal, and having nobody to ask who is not either selling something or frightened for me.

I will report back either way, because I have been helped by other people's follow-ups more than by their questions.

RohanPune, IN

The thing that changed it for me was going slower, agreed with my prescriber. I am not suggesting you do that. I am saying the conversation exists.

RenFacilitatorBristol, UK

the opening post said something I want to sit with for a second.

I want to slow this down a little. There are four different answers flying about and they are all somebody's real experience, which makes them true and not necessarily relevant to the person who asked.

26me too 7

BoWhitby, UK

Building on what the opening post wrote rather than answering the original question.

Practical, boring answer: write the three questions down before you go in. I have never once remembered them otherwise.

BertrandToulouse, FR

I did exactly the same and felt terrible about it. You have not done anything wrong.

AnnikaStockholm, SE

Building on what the reply above wrote rather than answering the original question.

Yes to the burping. It is real, it is unbeautiful, and it does settle.

ClemmieNorwich, UK

I am about four months behind you and I have been dreading exactly this, so thank you for writing it down before I got there.

TabbyMargate, UK

For what it is worth, the trial data on this is thinner than the confidence of the internet would suggest. Worth knowing when you read the posts.

11me too 3

BastianFreiburg, DE

It got worse before it got better for me, which I wish someone had said. About ten days of worse.

TaaviTallinn, EE

I asked my nurse the same question and she said something I have repeated ever since: that the aim is to keep you on treatment, not to get you up the schedule.

BronLincoln, UK

#10

Please do not read the comments under news articles about this. I lost a fortnight to that.

BaySt Ives, UK

#11

Similar here, and mine turned out to be a completely unrelated deficiency picked up on bloods.

TanviMumbai, IN

#12

I have been in this circle a year and this question comes round every few months. It is not a silly question. It is the question.

11me too 8

BramGhent, BE

#13

Yes. All of this. I had the same in my third month and I remember thinking there was something specifically wrong with me, which there was not.

NemoneLewes, UK

#14

Building on what the reply above wrote rather than answering the original question.

Mine lasted about seven weeks and then lifted over a few days. I cannot tell you why. I can tell you it lifted.

CloverTotnes, UK

#15

Coming back to this a fortnight later to say it settled. Leaving the update because I hate reading threads that stop.

12me too 5

HarriSwansea, UK

#16

Reading the reply above, I recognised more of that than I expected to.

I am the person who had the frightening version of this. I went in, it was investigated, and it was not what anyone feared. Going in is the whole of my advice.

RufusGuildford, UK

#17

the reply above said something I want to sit with for a second.

My experience was very boring, which I offer as data. Some of us just get a dull time of it.

OsricSalisbury, UK

#18

What helped was lowering my own expectations of the week rather than trying to hold the week together.

RenFacilitatorBristol, UK

#19

Before anyone offers a remedy: what has been described here is on the list of things that need a clinician today rather than a thread. I am going to be firm about that, kindly.

AshwinBengaluru, IN

#20

Building on what the reply above wrote rather than answering the original question.

Two things that helped me, neither of them clever: small amounts more often, and drinking a lot more than felt necessary.