Who was excluded from these trials, and who that leaves out

Started 12 October 2025 · 13 replies · 119 hearts · read 1.6k times

PamSouthport, UK · 12 October 2025

9 months ago

A question rather than an update: Who was excluded from these trials, and who that leaves out

Putting this here because I do not want to be sold anything, I want to know what is actually established.

I am aware some of this may be nothing. I would still like to know whether other people have had it, because I have spent a fortnight assuming I am the only one.

The thing that has surprised me most is how much of this is about other people rather than about me.

Thanks all. Genuinely.

EphraimBrooklyn, NY

My experience was very boring, which I offer as data. Some of us just get a dull time of it.

6me too 6

SunilFacilitatorBirmingham, UK

Reading the opening post, I recognised more of that than I expected to.

I will leave this open for a few more days and then add it to the circle's resources, because the answers here are better than anything I would have written.

SaoirseKilkenny, IE

the reply above — yes, and the bit that took me longest to accept was the next part.

Please do not read the comments under news articles about this. I lost a fortnight to that.

StellanMalmö, SE

I asked my nurse the same question and she said something I have repeated ever since: that the aim is to keep you on treatment, not to get you up the schedule.

TiborBratislava, SK

I did exactly the same and felt terrible about it. You have not done anything wrong.

GilTel Aviv, IL

Practical, boring answer: write the three questions down before you go in. I have never once remembered them otherwise.

PádraigGalway, IE

Coming back to this a fortnight later to say it settled. Leaving the update because I hate reading threads that stop.

PriyaReading, UK

Reading the reply above, I recognised more of that than I expected to.

I am the person who had the frightening version of this. I went in, it was investigated, and it was not what anyone feared. Going in is the whole of my advice.

11me too 7

GwendaEbbw Vale, UK

No advice, just recognition. That sounds exhausting and I am sorry you are in it.

OskarWarsaw, PL

#10

I keep a two-line diary and it is the only reason I could answer this question about myself. Worth starting even now.

10me too 4

NilsUppsala, SE

#11

Mine lasted about seven weeks and then lifted over a few days. I cannot tell you why. I can tell you it lifted.

SunilFacilitatorBirmingham, UK

#12

the reply above — yes, and the bit that took me longest to accept was the next part.

Two things, both boring. First, none of us can tell you what to take. Second, the conversation you want to have is with your prescriber, and we can help you write it down.

BettinaGraz, AT

#13

I have been in this circle a year and this question comes round every few months. It is not a silly question. It is the question.

6me too 3