The fortnight I could not keep water down

Started 16 December 2024 · 21 replies · 226 hearts · read 3.9k times

NilsUppsala, SE · 16 December 2024

1.6 years ago

The fortnight I could not keep water down — putting it in its own thread so it does not get lost in the check-in.

Something is going on with my body and I would like to know whether it is ordinary.

What I keep tripping on is not the physical bit. It is the not knowing whether what I am experiencing is normal, and having nobody to ask who is not either selling something or frightened for me.

The thing that has surprised me most is how much of this is about other people rather than about me.

I will report back either way, because I have been helped by other people's follow-ups more than by their questions.

TaaviTallinn, EE

I keep a two-line diary and it is the only reason I could answer this question about myself. Worth starting even now.

PeggyRotherham, UK

No advice, just recognition. That sounds exhausting and I am sorry you are in it.

12me too 9

TomásFacilitatorLisbon, Portugal

I will leave this open for a few more days and then add it to the circle's resources, because the answers here are better than anything I would have written.

MarenBremen, DE

Can I gently push back on one thing? Not the substance, just the framing — you have written twice that you should be coping better. Who told you that?

NanNeath, UK

Yes to the burping. It is real, it is unbeautiful, and it does settle.

14me too 4

GwenBangor, UK

I am about four months behind you and I have been dreading exactly this, so thank you for writing it down before I got there.

OsipTbilisi, GE

For what it is worth, the trial data on this is thinner than the confidence of the internet would suggest. Worth knowing when you read the posts.

LarkGalway, IE

the reply above — yes, and the bit that took me longest to accept was the next part.

It got worse before it got better for me, which I wish someone had said. About ten days of worse.

RaviLeicester, UK

The thing that changed it for me was going slower, agreed with my prescriber. I am not suggesting you do that. I am saying the conversation exists.

CasperOdense, DK

#10

the reply above said something I want to sit with for a second.

Have you got anyone who can be with you when you do it? It made an enormous difference to me and I felt silly asking.

NadirCasablanca, MA

#11

Please do not read the comments under news articles about this. I lost a fortnight to that.

HéloïseGeneva, CH

#12

I asked my nurse the same question and she said something I have repeated ever since: that the aim is to keep you on treatment, not to get you up the schedule.

PersisBristol, UK

#13

Similar here, and mine turned out to be a completely unrelated deficiency picked up on bloods.

14me too 4

BaySt Ives, UK

#14

What the reply above described happened to me too, in a slightly different order.

I have been in this circle a year and this question comes round every few months. It is not a silly question. It is the question.

MaudGhent, BE

#15

the reply above said something I want to sit with for a second.

Yes. All of this. I had the same in my third month and I remember thinking there was something specifically wrong with me, which there was not.

BrimHalifax, UK

#16

Mine lasted about seven weeks and then lifted over a few days. I cannot tell you why. I can tell you it lifted.

PerrinNice, FR

#17

Two things that helped me, neither of them clever: small amounts more often, and drinking a lot more than felt necessary.

BrammyBelfast, NI

#18

I would take that to a clinician rather than to us, and I would do it this week. Not because it is definitely serious — because it is the sort of thing that is much easier to rule out than to worry about.

11me too 7

NilsUppsala, SE

#19

the reply above — yes, and the bit that took me longest to accept was the next part.

Different experience here, for balance. Mine did not improve and in the end I stopped, and that was the right call for me. Both outcomes exist.

8me too 3

TomásFacilitatorLisbon, Portugal

#20

If any of this has landed close to home for you while reading, our support resources page lists the kinds of services worth finding. No obligation and no drama.

PeggyRotherham, UK

#21

The phrase that unlocked my appointment was asking what specifically she wanted me to watch for. It moved us from reassurance to a plan in about thirty seconds.