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Dizziness on standing — what was going on for me

Started 25 November 2024 · 14 replies · 155 hearts · read 2.3k times

NanNeath, UK · 25 November 2024
1.6 years ago

Starting a thread on this because it keeps coming up in ones and twos: Dizziness on standing — what was going on for me

Something is going on with my body and I would like to know whether it is ordinary.

What I keep tripping on is not the physical bit. It is the not knowing whether what I am experiencing is normal, and having nobody to ask who is not either selling something or frightened for me.

The thing that has surprised me most is how much of this is about other people rather than about me.

Thanks all. Genuinely.

52

GwenBangor, UK
#1

Yes to the burping. It is real, it is unbeautiful, and it does settle.

11

HéloïseGeneva, CH
#2

Gently disagreeing with the opening post, or rather adding the other half of it.

I am about four months behind you and I have been dreading exactly this, so thank you for writing it down before I got there.

15

PeggyRotherham, UK
#3

What the opening post described happened to me too, in a slightly different order.

For what it is worth, the trial data on this is thinner than the confidence of the internet would suggest. Worth knowing when you read the posts.

8

TomásFacilitatorLisbon, Portugal
#4

Thank you for writing this. I am not going to add information to it. I am going to say that what you have described is very common and very rarely said out loud.

13

OsipTbilisi, GE
#5

Building on what the reply above wrote rather than answering the original question.

The thing that changed it for me was going slower, agreed with my prescriber. I am not suggesting you do that. I am saying the conversation exists.

7

MarenBremen, DE
#6

Have you got anyone who can be with you when you do it? It made an enormous difference to me and I felt silly asking.

12

PerrinNice, FR
#7

Practical, boring answer: write the three questions down before you go in. I have never once remembered them otherwise.

9

NadirCasablanca, MA
#8

I did exactly the same and felt terrible about it. You have not done anything wrong.

13me too 5

CasperOdense, DK
#9

What the reply above described happened to me too, in a slightly different order.

I would take that to a clinician rather than to us, and I would do it this week. Not because it is definitely serious — because it is the sort of thing that is much easier to rule out than to worry about.

10

RaviLeicester, UK
#10

Two things that helped me, neither of them clever: small amounts more often, and drinking a lot more than felt necessary.

7me too 6

BrammyBelfast, NI
#11

the reply above said something I want to sit with for a second.

My experience was very boring, which I offer as data. Some of us just get a dull time of it.

8me too 8

BrimHalifax, UK
#12

What helped was lowering my own expectations of the week rather than trying to hold the week together.

10

TomásFacilitatorLisbon, Portugal
#13

Noticing out loud that this conversation has drifted into comparison. That happens without anyone intending it and it does not help anyone. Let us come back to the person who asked.

20

PersisBristol, UK
#14

I asked my nurse the same question and she said something I have repeated ever since: that the aim is to keep you on treatment, not to get you up the schedule.

12