A peer support community, independent and not for sale. Since February 2024.

GLP CircleA peer support community

Thyroid

Hashimoto's and the fatigue overlap

Started 18 April 2025 · 18 replies · 201 hearts · read 4.1k times

GaelanInverurie, UK · 18 April 2025
1.3 years ago

Hashimoto's and the fatigue overlap — putting it in its own thread so it does not get lost in the check-in.

Before anyone says it: yes, I have an appointment booked. I would still like to hear from people who have had this.

Here is where I am. The medication side has been more or less as described, and the part nobody prepared me for is everything around it: what to say to people, how to plan a week, and how to tell the difference between a thing to endure and a thing to raise.

What I keep tripping on is not the physical bit. It is the not knowing whether what I am experiencing is normal, and having nobody to ask who is not either selling something or frightened for me.

Sorry for the length. If anyone has been here, I would very much like to hear it.

67

GrizelKirkcaldy, UK
#1

No advice, just recognition. That sounds exhausting and I am sorry you are in it.

12

MinnieDoncaster, UK
#2

Reading the opening post, I recognised more of that than I expected to.

I keep a two-line diary and it is the only reason I could answer this question about myself. Worth starting even now.

10

TansyLudlow, UK
#3

the reply above — yes, and the bit that took me longest to accept was the next part.

Can I gently push back on one thing? Not the substance, just the framing — you have written twice that you should be coping better. Who told you that?

13me too 6

MiraFacilitatorRotterdam, Netherlands
#4

Noticing out loud that this conversation has drifted into comparison. That happens without anyone intending it and it does not help anyone. Let us come back to the person who asked.

17

LlianCarmarthen, UK
#5

I am about four months behind you and I have been dreading exactly this, so thank you for writing it down before I got there.

15

Bryn MNeath, UK
#6

Yes to the burping. It is real, it is unbeautiful, and it does settle.

11

ÖzlemIzmir, TR
#7

It got worse before it got better for me, which I wish someone had said. About ten days of worse.

5

MaudGhent, BE
#8

For what it is worth, the trial data on this is thinner than the confidence of the internet would suggest. Worth knowing when you read the posts.

8me too 1

GusStirling, UK
#9

the reply above — yes, and the bit that took me longest to accept was the next part.

Have you got anyone who can be with you when you do it? It made an enormous difference to me and I felt silly asking.

9me too 9

PerryCardigan, UK
#10

The thing that changed it for me was going slower, agreed with my prescriber. I am not suggesting you do that. I am saying the conversation exists.

11

PerlaManila, PH
#11

Reading the reply above, I recognised more of that than I expected to.

I am the person who had the frightening version of this. I went in, it was investigated, and it was not what anyone feared. Going in is the whole of my advice.

14me too 8

PersisBristol, UK
#12

Coming back to this a fortnight later to say it settled. Leaving the update because I hate reading threads that stop.

9

PrueChester, UK
#13

Practical, boring answer: write the three questions down before you go in. I have never once remembered them otherwise.

12

GaelanInverurie, UK
#14

the reply above said something I want to sit with for a second.

I did exactly the same and felt terrible about it. You have not done anything wrong.

10

GrizelKirkcaldy, UK
#15

I asked my nurse the same question and she said something I have repeated ever since: that the aim is to keep you on treatment, not to get you up the schedule.

8

MinnieDoncaster, UK
#16

the reply above — yes, and the bit that took me longest to accept was the next part.

Please do not read the comments under news articles about this. I lost a fortnight to that.

13

MiraFacilitatorRotterdam, Netherlands
#17

I will leave this open for a few more days and then add it to the circle's resources, because the answers here are better than anything I would have written.

13

BryonyMalvern, UK
#18

My experience was very boring, which I offer as data. Some of us just get a dull time of it.

11