Levothyroxine timing around everything else

Started 9 January 2025 · 18 replies · 209 hearts · read 1.7k times

GusStirling, UK · 9 January 2025

1.5 years ago

A question rather than an update: Levothyroxine timing around everything else

Something is going on with my body and I would like to know whether it is ordinary.

What I keep tripping on is not the physical bit. It is the not knowing whether what I am experiencing is normal, and having nobody to ask who is not either selling something or frightened for me.

I have read the guides here, which were more useful than anything else I have found, and I still have a question they do not cover.

The thing that has surprised me most is how much of this is about other people rather than about me.

Thanks all. Genuinely.

ÖzlemIzmir, TR

What helped was lowering my own expectations of the week rather than trying to hold the week together.

MiraFacilitatorRotterdam, Netherlands

the opening post said something I want to sit with for a second.

Two things, both boring. First, none of us can tell you what to take. Second, the conversation you want to have is with your prescriber, and we can help you write it down.

29me too 7

BryonyMalvern, UK

Building on what the opening post wrote rather than answering the original question.

I asked my nurse the same question and she said something I have repeated ever since: that the aim is to keep you on treatment, not to get you up the schedule.

GaelanInverurie, UK

Please do not read the comments under news articles about this. I lost a fortnight to that.

TansyLudlow, UK

Reading the reply above, I recognised more of that than I expected to.

I have been in this circle a year and this question comes round every few months. It is not a silly question. It is the question.

7me too 2

LlianCarmarthen, UK

Similar here, and mine turned out to be a completely unrelated deficiency picked up on bloods.

MinnieDoncaster, UK

Mine lasted about seven weeks and then lifted over a few days. I cannot tell you why. I can tell you it lifted.

PerlaManila, PH

Yes. All of this. I had the same in my third month and I remember thinking there was something specifically wrong with me, which there was not.

GrizelKirkcaldy, UK

I would take that to a clinician rather than to us, and I would do it this week. Not because it is definitely serious — because it is the sort of thing that is much easier to rule out than to worry about.

MaudGhent, BE

#10

Two things that helped me, neither of them clever: small amounts more often, and drinking a lot more than felt necessary.

PersisBristol, UK

#11

Coming back to this a fortnight later to say it settled. Leaving the update because I hate reading threads that stop.

10me too 9

Bryn MNeath, UK

#12

What the reply above described happened to me too, in a slightly different order.

I am the person who had the frightening version of this. I went in, it was investigated, and it was not what anyone feared. Going in is the whole of my advice.

PerryCardigan, UK

#13

the reply above — yes, and the bit that took me longest to accept was the next part.

My experience was very boring, which I offer as data. Some of us just get a dull time of it.

GusStirling, UK

#14

Different experience here, for balance. Mine did not improve and in the end I stopped, and that was the right call for me. Both outcomes exist.

ÖzlemIzmir, TR

#15

The phrase that unlocked my appointment was asking what specifically she wanted me to watch for. It moved us from reassurance to a plan in about thirty seconds.

10me too 4

PrueChester, UK

#16

No advice, just recognition. That sounds exhausting and I am sorry you are in it.

MiraFacilitatorRotterdam, Netherlands

#17

Gently: you have apologised three times in a post where you have done nothing that requires an apology.

GaelanInverurie, UK

#18

Reading the reply above, I recognised more of that than I expected to.

I keep a two-line diary and it is the only reason I could answer this question about myself. Worth starting even now.