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Thyroid

Post-thyroidectomy and on treatment

Started 20 November 2024 · 19 replies · 239 hearts · read 1.8k times

LlianCarmarthen, UK · 20 November 2024
1.7 years ago

A question rather than an update: Post-thyroidectomy and on treatment

I have avoided asking about this for six weeks out of pure embarrassment.

I have read the guides here, which were more useful than anything else I have found, and I still have a question they do not cover.

What I would find most useful is not advice. It is somebody describing what their version of this was, and how long it went on for.

The thing that has surprised me most is how much of this is about other people rather than about me.

Not looking for a plan. Just company and whatever anyone has found.

80

ÖzlemIzmir, TR
#1

I keep a two-line diary and it is the only reason I could answer this question about myself. Worth starting even now.

14

PersisBristol, UK
#2

the opening post said something I want to sit with for a second.

No advice, just recognition. That sounds exhausting and I am sorry you are in it.

11

MiraFacilitatorRotterdam, Netherlands
#3

Noticing out loud that this conversation has drifted into comparison. That happens without anyone intending it and it does not help anyone. Let us come back to the person who asked.

29me too 9

PerryCardigan, UK
#4

Different experience here, for balance. Mine did not improve and in the end I stopped, and that was the right call for me. Both outcomes exist.

10

GusStirling, UK
#5

Building on what the reply above wrote rather than answering the original question.

I would take that to a clinician rather than to us, and I would do it this week. Not because it is definitely serious — because it is the sort of thing that is much easier to rule out than to worry about.

10

MinnieDoncaster, UK
#6

Two things that helped me, neither of them clever: small amounts more often, and drinking a lot more than felt necessary.

11

MaudGhent, BE
#7

Mine lasted about seven weeks and then lifted over a few days. I cannot tell you why. I can tell you it lifted.

9

GaelanInverurie, UK
#8

the reply above said something I want to sit with for a second.

Yes. All of this. I had the same in my third month and I remember thinking there was something specifically wrong with me, which there was not.

13

BryonyMalvern, UK
#9

Building on what the reply above wrote rather than answering the original question.

I have been in this circle a year and this question comes round every few months. It is not a silly question. It is the question.

11

Bryn MNeath, UK
#10

Similar here, and mine turned out to be a completely unrelated deficiency picked up on bloods.

16me too 2

PerlaManila, PH
#11

I did exactly the same and felt terrible about it. You have not done anything wrong.

9

PrueChester, UK
#12

Practical, boring answer: write the three questions down before you go in. I have never once remembered them otherwise.

17

GrizelKirkcaldy, UK
#13

Gently disagreeing with the reply above, or rather adding the other half of it.

Have you got anyone who can be with you when you do it? It made an enormous difference to me and I felt silly asking.

11

LlianCarmarthen, UK
#14

The thing that changed it for me was going slower, agreed with my prescriber. I am not suggesting you do that. I am saying the conversation exists.

13me too 6

ÖzlemIzmir, TR
#15

the reply above — yes, and the bit that took me longest to accept was the next part.

My experience was very boring, which I offer as data. Some of us just get a dull time of it.

14me too 5

PersisBristol, UK
#16

What helped was lowering my own expectations of the week rather than trying to hold the week together.

8

TansyLudlow, UK
#17

Coming back to this a fortnight later to say it settled. Leaving the update because I hate reading threads that stop.

11

MiraFacilitatorRotterdam, Netherlands
#18

What the reply above described happened to me too, in a slightly different order.

Two things, both boring. First, none of us can tell you what to take. Second, the conversation you want to have is with your prescriber, and we can help you write it down.

14

GusStirling, UK
#19

Can I gently push back on one thing? Not the substance, just the framing — you have written twice that you should be coping better. Who told you that?

8