A peer support community, independent and not for sale. Since February 2024.

GLP CircleA peer support community

Vegan and vegetarian

B12, iron and a dietitian appointment worth having

Started 1 February 2025 · 21 replies · 227 hearts · read 2.6k times

IvesPenzance, UK · 1 February 2025
1.5 years ago

Starting a thread on this because it keeps coming up in ones and twos: B12, iron and a dietitian appointment worth having

Practical question, and possibly a silly one.

What I keep tripping on is not the physical bit. It is the not knowing whether what I am experiencing is normal, and having nobody to ask who is not either selling something or frightened for me.

Here is where I am. The medication side has been more or less as described, and the part nobody prepared me for is everything around it: what to say to people, how to plan a week, and how to tell the difference between a thing to endure and a thing to raise.

I have read the guides here, which were more useful than anything else I have found, and I still have a question they do not cover.

Sorry for the length. If anyone has been here, I would very much like to hear it.

76

NemoneLewes, UK
#1

I am the person who had the frightening version of this. I went in, it was investigated, and it was not what anyone feared. Going in is the whole of my advice.

9me too 3

AshwinBengaluru, IN
#2

Coming back to this a fortnight later to say it settled. Leaving the update because I hate reading threads that stop.

12

MableBolton, UK
#3

What helped was lowering my own expectations of the week rather than trying to hold the week together.

10

RenFacilitatorBristol, UK
#4

Gently disagreeing with the reply above, or rather adding the other half of it.

Thank you for writing this. I am not going to add information to it. I am going to say that what you have described is very common and very rarely said out loud.

14

NoleneDurban, ZA
#5

I asked my nurse the same question and she said something I have repeated ever since: that the aim is to keep you on treatment, not to get you up the schedule.

7

BrynAberystwyth, UK
#6

the reply above said something I want to sit with for a second.

Please do not read the comments under news articles about this. I lost a fortnight to that.

12

MorayElgin, UK
#7

Building on what the reply above wrote rather than answering the original question.

I have been in this circle a year and this question comes round every few months. It is not a silly question. It is the question.

9

TanviMumbai, IN
#8

Similar here, and mine turned out to be a completely unrelated deficiency picked up on bloods.

14

PietPretoria, ZA
#9

Yes to the burping. It is real, it is unbeautiful, and it does settle.

13

CloverTotnes, UK
#10

Gently disagreeing with the reply above, or rather adding the other half of it.

I am about four months behind you and I have been dreading exactly this, so thank you for writing it down before I got there.

10

IvesPenzance, UK
#11

the reply above said something I want to sit with for a second.

Can I gently push back on one thing? Not the substance, just the framing — you have written twice that you should be coping better. Who told you that?

6

NemoneLewes, UK
#12

My pharmacist was more use than anyone. Ten minutes at the counter, no appointment, no charge.

9me too 4

AshwinBengaluru, IN
#13

It got worse before it got better for me, which I wish someone had said. About ten days of worse.

8

MableBolton, UK
#14

For what it is worth, the trial data on this is thinner than the confidence of the internet would suggest. Worth knowing when you read the posts.

9

TorrinAberdeen, UK
#15

Have you got anyone who can be with you when you do it? It made an enormous difference to me and I felt silly asking.

7

NoleneDurban, ZA
#16

Building on what the reply above wrote rather than answering the original question.

The thing that changed it for me was going slower, agreed with my prescriber. I am not suggesting you do that. I am saying the conversation exists.

10

BrynAberystwyth, UK
#17

Gently disagreeing with the reply above, or rather adding the other half of it.

I did exactly the same and felt terrible about it. You have not done anything wrong.

9me too 2

MorayElgin, UK
#18

Practical, boring answer: write the three questions down before you go in. I have never once remembered them otherwise.

11

TanviMumbai, IN
#19

Yes. All of this. I had the same in my third month and I remember thinking there was something specifically wrong with me, which there was not.

11

CloverTotnes, UK
#21

Building on what the reply above wrote rather than answering the original question.

The phrase that unlocked my appointment was asking what specifically she wanted me to watch for. It moved us from reassurance to a plan in about thirty seconds.

11