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A question rather than an update: I came off because it was not safe for me
I have been sitting on this for a month.
What I would find most useful is not advice. It is somebody describing what their version of this was, and how long it went on for.
I have read the guides here, which were more useful than anything else I have found, and I still have a question they do not cover.
Thanks all. Genuinely.
37
Have you got anyone who can be with you when you do it? It made an enormous difference to me and I felt silly asking.
3
The thing that changed it for me was going slower, agreed with my prescriber. I am not suggesting you do that. I am saying the conversation exists.
8
the reply above — yes, and the bit that took me longest to accept was the next part.
It got worse before it got better for me, which I wish someone had said. About ten days of worse.
9me too 7
Before anyone offers a remedy: what has been described here is on the list of things that need a clinician today rather than a thread. I am going to be firm about that, kindly.
11
Gently disagreeing with the reply above, or rather adding the other half of it.
I am about four months behind you and I have been dreading exactly this, so thank you for writing it down before I got there.
5
Yes to the burping. It is real, it is unbeautiful, and it does settle.
8
Can I gently push back on one thing? Not the substance, just the framing — you have written twice that you should be coping better. Who told you that?
9
What the reply above described happened to me too, in a slightly different order.
My pharmacist was more use than anyone. Ten minutes at the counter, no appointment, no charge.
6me too 1
No advice, just recognition. That sounds exhausting and I am sorry you are in it.
9
Building on what the reply above wrote rather than answering the original question.
I keep a two-line diary and it is the only reason I could answer this question about myself. Worth starting even now.
5
I have been in this circle a year and this question comes round every few months. It is not a silly question. It is the question.
8
Similar here, and mine turned out to be a completely unrelated deficiency picked up on bloods.
6
Mine lasted about seven weeks and then lifted over a few days. I cannot tell you why. I can tell you it lifted.
9
the reply above — yes, and the bit that took me longest to accept was the next part.
I want to slow this down a little. There are four different answers flying about and they are all somebody's real experience, which makes them true and not necessarily relevant to the person who asked.
10me too 8
Building on what the reply above wrote rather than answering the original question.
What helped was lowering my own expectations of the week rather than trying to hold the week together.
4me too 4