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I decided not to take it, and that was the right decision for me

Started 25 January 2026 · 12 replies · 104 hearts · read 2.3k times

SadieSalford, UK · 25 January 2026
6 months ago

I decided not to take it, and that was the right decision for me Writing it down partly to work out what I actually think.

This is a difficult one to write and I have deleted it twice.

The thing that has surprised me most is how much of this is about other people rather than about me.

I have read the guides here, which were more useful than anything else I have found, and I still have a question they do not cover.

What I keep tripping on is not the physical bit. It is the not knowing whether what I am experiencing is normal, and having nobody to ask who is not either selling something or frightened for me.

I will report back either way, because I have been helped by other people's follow-ups more than by their questions.

35

GwionBangor, UK
#1

The phrase that unlocked my appointment was asking what specifically she wanted me to watch for. It moved us from reassurance to a plan in about thirty seconds.

6

JonahFacilitatorCork, Ireland
#2

I want to slow this down a little. There are four different answers flying about and they are all somebody's real experience, which makes them true and not necessarily relevant to the person who asked.

16

OllieCardiff, UK
#3

I keep a two-line diary and it is the only reason I could answer this question about myself. Worth starting even now.

7

RunaAarhus, DK
#4

the opening post said something I want to sit with for a second.

No advice, just recognition. That sounds exhausting and I am sorry you are in it.

10

OsricSalisbury, UK
#5

What the reply above described happened to me too, in a slightly different order.

Mine lasted about seven weeks and then lifted over a few days. I cannot tell you why. I can tell you it lifted.

4me too 6

BramwellNottingham, UK
#6

Yes. All of this. I had the same in my third month and I remember thinking there was something specifically wrong with me, which there was not.

8

OrlaithDonegal, IE
#7

I would take that to a clinician rather than to us, and I would do it this week. Not because it is definitely serious — because it is the sort of thing that is much easier to rule out than to worry about.

8

BroganCumbernauld, UK
#8

Two things that helped me, neither of them clever: small amounts more often, and drinking a lot more than felt necessary.

7

RenataKraków, PL
#9

I asked my nurse the same question and she said something I have repeated ever since: that the aim is to keep you on treatment, not to get you up the schedule.

9

PádraigGalway, IE
#10

the reply above — yes, and the bit that took me longest to accept was the next part.

Please do not read the comments under news articles about this. I lost a fortnight to that.

3me too 4

JonahFacilitatorCork, Ireland
#11

Before anyone offers a remedy: what has been described here is on the list of things that need a clinician today rather than a thread. I am going to be firm about that, kindly.

18me too 2

GrizelKirkcaldy, UK
#12

Reading the reply above, I recognised more of that than I expected to.

What helped was lowering my own expectations of the week rather than trying to hold the week together.

8