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Is it meant to feel like this or have I done it wrong

Started 16 August 2025 · 20 replies · 160 hearts · read 2.8k times

OsipTbilisi, GE · 16 August 2025
11 months ago

Is it meant to feel like this or have I done it wrong Writing it down partly to work out what I actually think.

I have been reading here for a few weeks and have not posted, so this is me posting.

I have written down what has actually happened, in order, because I find that more useful than my summary of it.

What I would find most useful is not advice. It is somebody describing what their version of this was, and how long it went on for.

Anyway. Thank you for reading this far. Any experience gratefully received, and I promise to come back and say what happened.

53

TasnimBradford, UK
#1

Coming back to this a fortnight later to say it settled. Leaving the update because I hate reading threads that stop.

4

EsiFacilitatorToronto, Canada
#2

If any of this has landed close to home for you while reading, our support resources page lists the kinds of services worth finding. No obligation and no drama.

19

PerduMontpellier, FR
#3

the reply above — yes, and the bit that took me longest to accept was the next part.

I did exactly the same and felt terrible about it. You have not done anything wrong.

6me too 1

CarlMiddlesbrough, UK
#4

Practical, boring answer: write the three questions down before you go in. I have never once remembered them otherwise.

7

TorinBelfast, NI
#5

Please do not read the comments under news articles about this. I lost a fortnight to that.

8

TommieEly, UK
#6

Building on what the reply above wrote rather than answering the original question.

I asked my nurse the same question and she said something I have repeated ever since: that the aim is to keep you on treatment, not to get you up the schedule.

9me too 3

SephNorwich, UK
#7

My experience was very boring, which I offer as data. Some of us just get a dull time of it.

6

SaskiaThe Hague, NL
#8

What helped was lowering my own expectations of the week rather than trying to hold the week together.

8

DelphiThessaloniki, GR
#9

Yes. All of this. I had the same in my third month and I remember thinking there was something specifically wrong with me, which there was not.

9

SerenLlandudno, UK
#10

Mine lasted about seven weeks and then lifted over a few days. I cannot tell you why. I can tell you it lifted.

5

OllieCardiff, UK
#11

Reading the reply above, I recognised more of that than I expected to.

Similar here, and mine turned out to be a completely unrelated deficiency picked up on bloods.

4

CormacWaterford, IE
#12

I have been in this circle a year and this question comes round every few months. It is not a silly question. It is the question.

8me too 3

TychoLeiden, NL
#13

Two things that helped me, neither of them clever: small amounts more often, and drinking a lot more than felt necessary.

6

OsipTbilisi, GE
#14

I would take that to a clinician rather than to us, and I would do it this week. Not because it is definitely serious — because it is the sort of thing that is much easier to rule out than to worry about.

10

TasnimBradford, UK
#15

Different experience here, for balance. Mine did not improve and in the end I stopped, and that was the right call for me. Both outcomes exist.

8me too 7

BodhiByron Bay, AU
#16

The phrase that unlocked my appointment was asking what specifically she wanted me to watch for. It moved us from reassurance to a plan in about thirty seconds.

8

PerduMontpellier, FR
#17

No advice, just recognition. That sounds exhausting and I am sorry you are in it.

7

CarlMiddlesbrough, UK
#18

Gently disagreeing with the reply above, or rather adding the other half of it.

I keep a two-line diary and it is the only reason I could answer this question about myself. Worth starting even now.

5

EsiFacilitatorToronto, Canada
#19

I will leave this open for a few more days and then add it to the circle's resources, because the answers here are better than anything I would have written.

16

TommieEly, UK
#20

the reply above said something I want to sit with for a second.

Have you got anyone who can be with you when you do it? It made an enormous difference to me and I felt silly asking.

7