I am starting at 62 and I feel late to everything

Started 3 April 2025 · 22 replies · 214 hearts · read 2k times

CormacWaterford, IE · 3 April 2025

1.3 years ago

I am starting at 62 and I feel late to everything — putting it in its own thread so it does not get lost in the check-in.

I have been reading here for a few weeks and have not posted, so this is me posting.

I have written down what has actually happened, in order, because I find that more useful than my summary of it.

I have read the guides here, which were more useful than anything else I have found, and I still have a question they do not cover.

I will report back either way, because I have been helped by other people's follow-ups more than by their questions.

SerenLlandudno, UK

I am about four months behind you and I have been dreading exactly this, so thank you for writing it down before I got there.

EsiFacilitatorToronto, Canada

If any of this has landed close to home for you while reading, our support resources page lists the kinds of services worth finding. No obligation and no drama.

SephNorwich, UK

Can I gently push back on one thing? Not the substance, just the framing — you have written twice that you should be coping better. Who told you that?

8me too 8

TommieEly, UK

Building on what the reply above wrote rather than answering the original question.

My pharmacist was more use than anyone. Ten minutes at the counter, no appointment, no charge.

SaskiaThe Hague, NL

Have you got anyone who can be with you when you do it? It made an enormous difference to me and I felt silly asking.

OllieCardiff, UK

The thing that changed it for me was going slower, agreed with my prescriber. I am not suggesting you do that. I am saying the conversation exists.

11me too 1

PerduMontpellier, FR

Gently disagreeing with the reply above, or rather adding the other half of it.

It got worse before it got better for me, which I wish someone had said. About ten days of worse.

CarlMiddlesbrough, UK

For what it is worth, the trial data on this is thinner than the confidence of the internet would suggest. Worth knowing when you read the posts.

DelphiThessaloniki, GR

Coming back to this a fortnight later to say it settled. Leaving the update because I hate reading threads that stop.

TorinBelfast, NI

#10

I am the person who had the frightening version of this. I went in, it was investigated, and it was not what anyone feared. Going in is the whole of my advice.

TychoLeiden, NL

#11

Practical, boring answer: write the three questions down before you go in. I have never once remembered them otherwise.

13me too 1

OsipTbilisi, GE

#12

I did exactly the same and felt terrible about it. You have not done anything wrong.

BodhiByron Bay, AU

#13

My experience was very boring, which I offer as data. Some of us just get a dull time of it.

CormacWaterford, IE

#14

Gently disagreeing with the reply above, or rather adding the other half of it.

What helped was lowering my own expectations of the week rather than trying to hold the week together.

SerenLlandudno, UK

#15

Please do not read the comments under news articles about this. I lost a fortnight to that.

TasnimBradford, UK

#16

the reply above — yes, and the bit that took me longest to accept was the next part.

I asked my nurse the same question and she said something I have repeated ever since: that the aim is to keep you on treatment, not to get you up the schedule.

SephNorwich, UK

#17

What the reply above described happened to me too, in a slightly different order.

Similar here, and mine turned out to be a completely unrelated deficiency picked up on bloods.

TommieEly, UK

#18

I have been in this circle a year and this question comes round every few months. It is not a silly question. It is the question.

9me too 5

SaskiaThe Hague, NL

#19

Building on what the reply above wrote rather than answering the original question.

Yes to the burping. It is real, it is unbeautiful, and it does settle.

OllieCardiff, UK

#20

Yes. All of this. I had the same in my third month and I remember thinking there was something specifically wrong with me, which there was not.

EsiFacilitatorToronto, Canada

#21

the reply above — yes, and the bit that took me longest to accept was the next part.

Gently: you have apologised three times in a post where you have done nothing that requires an apology.

CarlMiddlesbrough, UK

#22

Mine lasted about seven weeks and then lifted over a few days. I cannot tell you why. I can tell you it lifted.