A peer support community, independent and not for sale. Since February 2024.
How do you tell whether this is normal or a problem — putting it in its own thread so it does not get lost in the check-in.
I have been reading here for a few weeks and have not posted, so this is me posting.
I have written down what has actually happened, in order, because I find that more useful than my summary of it.
The thing that has surprised me most is how much of this is about other people rather than about me.
Thanks all. Genuinely.
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My experience was very boring, which I offer as data. Some of us just get a dull time of it.
12
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17me too 4
Coming back to this a fortnight later to say it settled. Leaving the update because I hate reading threads that stop.
11
Building on what the reply above wrote rather than answering the original question.
I am the person who had the frightening version of this. I went in, it was investigated, and it was not what anyone feared. Going in is the whole of my advice.
11
Similar here, and mine turned out to be a completely unrelated deficiency picked up on bloods.
6me too 1
I have been in this circle a year and this question comes round every few months. It is not a silly question. It is the question.
9
Gently disagreeing with the reply above, or rather adding the other half of it.
Please do not read the comments under news articles about this. I lost a fortnight to that.
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I asked my nurse the same question and she said something I have repeated ever since: that the aim is to keep you on treatment, not to get you up the schedule.
10
Two things that helped me, neither of them clever: small amounts more often, and drinking a lot more than felt necessary.
13
I would take that to a clinician rather than to us, and I would do it this week. Not because it is definitely serious — because it is the sort of thing that is much easier to rule out than to worry about.
15
Reading the reply above, I recognised more of that than I expected to.
What helped was lowering my own expectations of the week rather than trying to hold the week together.
8
Yes. All of this. I had the same in my third month and I remember thinking there was something specifically wrong with me, which there was not.
13me too 7
Mine lasted about seven weeks and then lifted over a few days. I cannot tell you why. I can tell you it lifted.
9
Different experience here, for balance. Mine did not improve and in the end I stopped, and that was the right call for me. Both outcomes exist.
14
The phrase that unlocked my appointment was asking what specifically she wanted me to watch for. It moved us from reassurance to a plan in about thirty seconds.
12me too 2
No advice, just recognition. That sounds exhausting and I am sorry you are in it.
13
I keep a two-line diary and it is the only reason I could answer this question about myself. Worth starting even now.
11
Gently disagreeing with the reply above, or rather adding the other half of it.
Can I gently push back on one thing? Not the substance, just the framing — you have written twice that you should be coping better. Who told you that?
8
Yes to the burping. It is real, it is unbeautiful, and it does settle.
12
the reply above said something I want to sit with for a second.
I am about four months behind you and I have been dreading exactly this, so thank you for writing it down before I got there.
10
I did exactly the same and felt terrible about it. You have not done anything wrong.
13
Building on what the reply above wrote rather than answering the original question.
Practical, boring answer: write the three questions down before you go in. I have never once remembered them otherwise.
12
I want to slow this down a little. There are four different answers flying about and they are all somebody's real experience, which makes them true and not necessarily relevant to the person who asked.
14
My pharmacist was more use than anyone. Ten minutes at the counter, no appointment, no charge.
11