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What actually happens in the first week

Started 20 April 2024 · 21 replies · 239 hearts · read 4.1k times

CormacWaterford, IE · 20 April 2024
2.2 years ago

Something I have been sitting with: What actually happens in the first week Not looking for advice so much as other people's experience.

I do not know if this belongs in this circle. Move me if not.

I am aware some of this may be nothing. I would still like to know whether other people have had it, because I have spent a fortnight assuming I am the only one.

The thing that has surprised me most is how much of this is about other people rather than about me.

Not looking for a plan. Just company and whatever anyone has found.

80

OsipTbilisi, GE
#1

Different experience here, for balance. Mine did not improve and in the end I stopped, and that was the right call for me. Both outcomes exist.

9

DelphiThessaloniki, GR
#2

The phrase that unlocked my appointment was asking what specifically she wanted me to watch for. It moved us from reassurance to a plan in about thirty seconds.

13

EsiFacilitatorToronto, Canada
#3

Two things, both boring. First, none of us can tell you what to take. Second, the conversation you want to have is with your prescriber, and we can help you write it down.

19me too 5

BodhiByron Bay, AU
#4

What the reply above described happened to me too, in a slightly different order.

I keep a two-line diary and it is the only reason I could answer this question about myself. Worth starting even now.

14

TasnimBradford, UK
#5

Gently disagreeing with the reply above, or rather adding the other half of it.

Yes. All of this. I had the same in my third month and I remember thinking there was something specifically wrong with me, which there was not.

6

TommieEly, UK
#6

Mine lasted about seven weeks and then lifted over a few days. I cannot tell you why. I can tell you it lifted.

14

CarlMiddlesbrough, UK
#7

Two things that helped me, neither of them clever: small amounts more often, and drinking a lot more than felt necessary.

8

TorinBelfast, NI
#8

I would take that to a clinician rather than to us, and I would do it this week. Not because it is definitely serious — because it is the sort of thing that is much easier to rule out than to worry about.

10

PerduMontpellier, FR
#9

Please do not read the comments under news articles about this. I lost a fortnight to that.

14

SephNorwich, UK
#10

What the reply above described happened to me too, in a slightly different order.

I asked my nurse the same question and she said something I have repeated ever since: that the aim is to keep you on treatment, not to get you up the schedule.

10me too 7

SaskiaThe Hague, NL
#11

I have been in this circle a year and this question comes round every few months. It is not a silly question. It is the question.

13

SerenLlandudno, UK
#12

the reply above — yes, and the bit that took me longest to accept was the next part.

Similar here, and mine turned out to be a completely unrelated deficiency picked up on bloods.

11

OllieCardiff, UK
#13

No advice, just recognition. That sounds exhausting and I am sorry you are in it.

12

CormacWaterford, IE
#14

Can I gently push back on one thing? Not the substance, just the framing — you have written twice that you should be coping better. Who told you that?

8

OsipTbilisi, GE
#15

Reading the reply above, I recognised more of that than I expected to.

What helped was lowering my own expectations of the week rather than trying to hold the week together.

14me too 5

DelphiThessaloniki, GR
#16

My experience was very boring, which I offer as data. Some of us just get a dull time of it.

7

TychoLeiden, NL
#17

I am the person who had the frightening version of this. I went in, it was investigated, and it was not what anyone feared. Going in is the whole of my advice.

11

BodhiByron Bay, AU
#18

the reply above said something I want to sit with for a second.

Coming back to this a fortnight later to say it settled. Leaving the update because I hate reading threads that stop.

10

TasnimBradford, UK
#19

My pharmacist was more use than anyone. Ten minutes at the counter, no appointment, no charge.

9

EsiFacilitatorToronto, Canada
#20

I will leave this open for a few more days and then add it to the circle's resources, because the answers here are better than anything I would have written.

13me too 1

CarlMiddlesbrough, UK
#21

I am about four months behind you and I have been dreading exactly this, so thank you for writing it down before I got there.

14