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Mental health

A hard week and the people who noticed

Started 20 September 2025 · 15 replies · 130 hearts · read 1.5k times

BessLouth, UK · 20 September 2025
10 months ago

A question rather than an update: A hard week and the people who noticed

I have been sitting on this for a month.

The thing that has surprised me most is how much of this is about other people rather than about me.

My prescriber has been fine, genuinely. The problem is that I get nine minutes twice a year and there is no version of nine minutes that covers this.

What I keep tripping on is not the physical bit. It is the not knowing whether what I am experiencing is normal, and having nobody to ask who is not either selling something or frightened for me.

Anyway. Thank you for reading this far. Any experience gratefully received, and I promise to come back and say what happened.

43

PippaTruro, UK
#1

I asked my nurse the same question and she said something I have repeated ever since: that the aim is to keep you on treatment, not to get you up the schedule.

6

BryherIsles of Scilly, UK
#2

Please do not read the comments under news articles about this. I lost a fortnight to that.

5me too 3

JonahFacilitatorCork, Ireland
#3

Before anyone offers a remedy: what has been described here is on the list of things that need a clinician today rather than a thread. I am going to be firm about that, kindly.

18

JontyOxford, UK
#4

Similar here, and mine turned out to be a completely unrelated deficiency picked up on bloods.

8

BronteHaworth, UK
#5

I am the person who had the frightening version of this. I went in, it was investigated, and it was not what anyone feared. Going in is the whole of my advice.

7

JunoBrighton, UK
#6

Gently disagreeing with the reply above, or rather adding the other half of it.

Coming back to this a fortnight later to say it settled. Leaving the update because I hate reading threads that stop.

5

TaaviTallinn, EE
#7

What the reply above described happened to me too, in a slightly different order.

What helped was lowering my own expectations of the week rather than trying to hold the week together.

8me too 8

OdessaLviv, UA
#8

My experience was very boring, which I offer as data. Some of us just get a dull time of it.

7

KaiVancouver, CA
#9

The thing that changed it for me was going slower, agreed with my prescriber. I am not suggesting you do that. I am saying the conversation exists.

10

BelCroydon, UK
#10

Have you got anyone who can be with you when you do it? It made an enormous difference to me and I felt silly asking.

6

BramwellNottingham, UK
#11

the reply above said something I want to sit with for a second.

I am about four months behind you and I have been dreading exactly this, so thank you for writing it down before I got there.

11

LeifTrondheim, NO
#12

Yes to the burping. It is real, it is unbeautiful, and it does settle.

8

CormacWaterford, IE
#13

It got worse before it got better for me, which I wish someone had said. About ten days of worse.

3

JonahFacilitatorCork, Ireland
#14

Thank you for writing this. I am not going to add information to it. I am going to say that what you have described is very common and very rarely said out loud.

17

TallisEly, UK
#15

No advice, just recognition. That sounds exhausting and I am sorry you are in it.

11