I fainted, I was fine, I did it again the next week

Started 12 February 2025 · 14 replies · 158 hearts · read 2.9k times

PerrineStrasbourg, FR · 12 February 2025

1.4 years ago

Starting a thread on this because it keeps coming up in ones and twos: I fainted, I was fine, I did it again the next week

I have avoided asking about this for six weeks out of pure embarrassment.

I have read the guides here, which were more useful than anything else I have found, and I still have a question they do not cover.

What I would find most useful is not advice. It is somebody describing what their version of this was, and how long it went on for.

The thing that has surprised me most is how much of this is about other people rather than about me.

Not looking for a plan. Just company and whatever anyone has found.

PietPretoria, ZA

I have been in this circle a year and this question comes round every few months. It is not a silly question. It is the question.

BassCoventry, UK

Similar here, and mine turned out to be a completely unrelated deficiency picked up on bloods.

EsiFacilitatorToronto, Canada

Noticing out loud that this conversation has drifted into comparison. That happens without anyone intending it and it does not help anyone. Let us come back to the person who asked.

19me too 3

Ollie OPeterhead, UK

Gently disagreeing with the opening post, or rather adding the other half of it.

Please do not read the comments under news articles about this. I lost a fortnight to that.

BessLouth, UK

What helped was lowering my own expectations of the week rather than trying to hold the week together.

TaaviTallinn, EE

My experience was very boring, which I offer as data. Some of us just get a dull time of it.

HéloïseGeneva, CH

What the reply above described happened to me too, in a slightly different order.

I am the person who had the frightening version of this. I went in, it was investigated, and it was not what anyone feared. Going in is the whole of my advice.

Bryn MNeath, UK

Coming back to this a fortnight later to say it settled. Leaving the update because I hate reading threads that stop.

TavitaApia, WS

I keep a two-line diary and it is the only reason I could answer this question about myself. Worth starting even now.

8me too 6

IslaOban, UK

#10

Gently disagreeing with the reply above, or rather adding the other half of it.

No advice, just recognition. That sounds exhausting and I am sorry you are in it.

WinkleWeymouth, UK

#11

Yes. All of this. I had the same in my third month and I remember thinking there was something specifically wrong with me, which there was not.

13me too 8

BronLincoln, UK

#12

What the reply above described happened to me too, in a slightly different order.

Mine lasted about seven weeks and then lifted over a few days. I cannot tell you why. I can tell you it lifted.

EsiFacilitatorToronto, Canada

#13

Two things, both boring. First, none of us can tell you what to take. Second, the conversation you want to have is with your prescriber, and we can help you write it down.

PerrineStrasbourg, FR

#14

I asked my nurse the same question and she said something I have repeated ever since: that the aim is to keep you on treatment, not to get you up the schedule.