Deciding to stop, on cost, with no drama

Started 24 February 2025 · 19 replies · 211 hearts · read 2k times

NadirCasablanca, MA · 24 February 2025

1.4 years ago

Deciding to stop, on cost, with no drama Writing it down partly to work out what I actually think.

I have a letter in front of me and I do not know what it actually says.

The thing that has surprised me most is how much of this is about other people rather than about me.

My prescriber has been fine, genuinely. The problem is that I get nine minutes twice a year and there is no version of nine minutes that covers this.

What I keep tripping on is not the physical bit. It is the not knowing whether what I am experiencing is normal, and having nobody to ask who is not either selling something or frightened for me.

Sorry for the length. If anyone has been here, I would very much like to hear it.

PeronelCanterbury, UK

Practical, boring answer: write the three questions down before you go in. I have never once remembered them otherwise.

IlyaAlmaty, KZ

I did exactly the same and felt terrible about it. You have not done anything wrong.

PetraFacilitatorMelbourne, Australia

Before anyone offers a remedy: what has been described here is on the list of things that need a clinician today rather than a thread. I am going to be firm about that, kindly.

LlianCarmarthen, UK

the reply above said something I want to sit with for a second.

Coming back to this a fortnight later to say it settled. Leaving the update because I hate reading threads that stop.

ZoëHackney, UK

What the reply above described happened to me too, in a slightly different order.

For what it is worth, the trial data on this is thinner than the confidence of the internet would suggest. Worth knowing when you read the posts.

7me too 2

OttoPrague, CZ

It got worse before it got better for me, which I wish someone had said. About ten days of worse.

KateBelfast, NI

The thing that changed it for me was going slower, agreed with my prescriber. I am not suggesting you do that. I am saying the conversation exists.

GavinDundee, UK

Have you got anyone who can be with you when you do it? It made an enormous difference to me and I felt silly asking.

SaffHastings, UK

What the reply above described happened to me too, in a slightly different order.

I have been in this circle a year and this question comes round every few months. It is not a silly question. It is the question.

GwennoPwllheli, UK

#10

Similar here, and mine turned out to be a completely unrelated deficiency picked up on bloods.

MoBradford, UK

#11

I am the person who had the frightening version of this. I went in, it was investigated, and it was not what anyone feared. Going in is the whole of my advice.

NadirCasablanca, MA

#12

What the reply above described happened to me too, in a slightly different order.

My experience was very boring, which I offer as data. Some of us just get a dull time of it.

13me too 5

PeronelCanterbury, UK

#13

the reply above — yes, and the bit that took me longest to accept was the next part.

What helped was lowering my own expectations of the week rather than trying to hold the week together.

IlyaAlmaty, KZ

#14

Please do not read the comments under news articles about this. I lost a fortnight to that.

HettieLancaster, UK

#15

Gently disagreeing with the reply above, or rather adding the other half of it.

Can I gently push back on one thing? Not the substance, just the framing — you have written twice that you should be coping better. Who told you that?

5me too 2

LlianCarmarthen, UK

#16

My pharmacist was more use than anyone. Ten minutes at the counter, no appointment, no charge.

ZoëHackney, UK

#17

I am about four months behind you and I have been dreading exactly this, so thank you for writing it down before I got there.

PetraFacilitatorMelbourne, Australia

#18

I will leave this open for a few more days and then add it to the circle's resources, because the answers here are better than anything I would have written.

KateBelfast, NI

#19

the reply above — yes, and the bit that took me longest to accept was the next part.

Different experience here, for balance. Mine did not improve and in the end I stopped, and that was the right call for me. Both outcomes exist.