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PCOS

Trying to conceive and coming off

Started 5 July 2024 · 21 replies · 249 hearts · read 2.8k times

NkechiAbuja, NG · 5 July 2024
2 years ago

Something I have been sitting with: Trying to conceive and coming off Not looking for advice so much as other people's experience.

I have had this diagnosis for a long time and none of the general advice quite fits me.

What I keep tripping on is not the physical bit. It is the not knowing whether what I am experiencing is normal, and having nobody to ask who is not either selling something or frightened for me.

I have written down what has actually happened, in order, because I find that more useful than my summary of it.

My prescriber has been fine, genuinely. The problem is that I get nine minutes twice a year and there is no version of nine minutes that covers this.

Thanks all. Genuinely.

83

GavinDundee, UK
#1

Practical, boring answer: write the three questions down before you go in. I have never once remembered them otherwise.

12me too 4

PrunellaBury St Edmunds, UK
#2

the opening post — yes, and the bit that took me longest to accept was the next part.

I did exactly the same and felt terrible about it. You have not done anything wrong.

8

TansyLudlow, UK
#3

Reading the opening post, I recognised more of that than I expected to.

I am the person who had the frightening version of this. I went in, it was investigated, and it was not what anyone feared. Going in is the whole of my advice.

13

MiraFacilitatorRotterdam, Netherlands
#4

Thank you for writing this. I am not going to add information to it. I am going to say that what you have described is very common and very rarely said out loud.

21

TinukeManchester, UK
#5

What the reply above described happened to me too, in a slightly different order.

What helped was lowering my own expectations of the week rather than trying to hold the week together.

10

RinManchester, UK
#6

My experience was very boring, which I offer as data. Some of us just get a dull time of it.

8

FreyaReykjavík, IS
#7

I asked my nurse the same question and she said something I have repeated ever since: that the aim is to keep you on treatment, not to get you up the schedule.

12

CallaWellington, NZ
#8

Please do not read the comments under news articles about this. I lost a fortnight to that.

7

MaeveSligo, IE
#9

I have been in this circle a year and this question comes round every few months. It is not a silly question. It is the question.

10

GittaBonn, DE
#10

Similar here, and mine turned out to be a completely unrelated deficiency picked up on bloods.

16

TildaCambridge, UK
#11

No advice, just recognition. That sounds exhausting and I am sorry you are in it.

10me too 1

MaryamBirmingham, UK
#12

I keep a two-line diary and it is the only reason I could answer this question about myself. Worth starting even now.

13

NadiaCairo, EG
#13

Can I gently push back on one thing? Not the substance, just the framing — you have written twice that you should be coping better. Who told you that?

9

AnnaAthens, GR
#14

What the reply above described happened to me too, in a slightly different order.

My pharmacist was more use than anyone. Ten minutes at the counter, no appointment, no charge.

16

SaraOslo, NO
#15

the reply above said something I want to sit with for a second.

I am about four months behind you and I have been dreading exactly this, so thank you for writing it down before I got there.

11

BeaDublin, IE
#16

Yes to the burping. It is real, it is unbeautiful, and it does settle.

6me too 4

NualaArmagh, NI
#17

It got worse before it got better for me, which I wish someone had said. About ten days of worse.

13

NikitaYerevan, AM
#18

For what it is worth, the trial data on this is thinner than the confidence of the internet would suggest. Worth knowing when you read the posts.

8

GudrunAkureyri, IS
#19

the reply above — yes, and the bit that took me longest to accept was the next part.

Have you got anyone who can be with you when you do it? It made an enormous difference to me and I felt silly asking.

6

MiraFacilitatorRotterdam, Netherlands
#20

If any of this has landed close to home for you while reading, our support resources page lists the kinds of services worth finding. No obligation and no drama.

25

NadirCasablanca, MA
#21

The thing that changed it for me was going slower, agreed with my prescriber. I am not suggesting you do that. I am saying the conversation exists.

15