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What I keep in my locker

Started 4 August 2025 · 17 replies · 163 hearts · read 3.3k times

BethanPontypridd, UK · 4 August 2025
12 months ago

Starting a thread on this because it keeps coming up in ones and twos: What I keep in my locker

The logistics of this are defeating me more than the medicine is.

I have written down what has actually happened, in order, because I find that more useful than my summary of it.

What I would find most useful is not advice. It is somebody describing what their version of this was, and how long it went on for.

I will report back either way, because I have been helped by other people's follow-ups more than by their questions.

54

OrsolyaBudapest, HU
#1

My experience was very boring, which I offer as data. Some of us just get a dull time of it.

11

RenataKraków, PL
#2

What helped was lowering my own expectations of the week rather than trying to hold the week together.

8me too 6

the reply above — yes, and the bit that took me longest to accept was the next part.

Thank you for writing this. I am not going to add information to it. I am going to say that what you have described is very common and very rarely said out loud.

21

Ollie OPeterhead, UK
#4

I am the person who had the frightening version of this. I went in, it was investigated, and it was not what anyone feared. Going in is the whole of my advice.

6

MattNottingham, UK
#5

Similar here, and mine turned out to be a completely unrelated deficiency picked up on bloods.

8me too 3

PerdyShrewsbury, UK
#6

Building on what the reply above wrote rather than answering the original question.

I have been in this circle a year and this question comes round every few months. It is not a silly question. It is the question.

9

BassCoventry, UK
#7

Please do not read the comments under news articles about this. I lost a fortnight to that.

13

HuwWrexham, UK
#8

I asked my nurse the same question and she said something I have repeated ever since: that the aim is to keep you on treatment, not to get you up the schedule.

6

NoahHull, UK
#9

Two things that helped me, neither of them clever: small amounts more often, and drinking a lot more than felt necessary.

8

RillaAberdeen, UK
#10

Reading the reply above, I recognised more of that than I expected to.

I would take that to a clinician rather than to us, and I would do it this week. Not because it is definitely serious — because it is the sort of thing that is much easier to rule out than to worry about.

9

TychoLeiden, NL
#11

Practical, boring answer: write the three questions down before you go in. I have never once remembered them otherwise.

9

NorahDerry, NI
#12

I did exactly the same and felt terrible about it. You have not done anything wrong.

7

BrackenHexham, UK
#13

Yes. All of this. I had the same in my third month and I remember thinking there was something specifically wrong with me, which there was not.

7me too 5

OdileMontreal, CA
#14

the reply above — yes, and the bit that took me longest to accept was the next part.

Coming back to this a fortnight later to say it settled. Leaving the update because I hate reading threads that stop.

6

BrennaEnniskillen, NI
#15

Mine lasted about seven weeks and then lifted over a few days. I cannot tell you why. I can tell you it lifted.

10

the reply above said something I want to sit with for a second.

Gently: you have apologised three times in a post where you have done nothing that requires an apology.

14

AshSunderland, UK
#17

Reading the reply above, I recognised more of that than I expected to.

Different experience here, for balance. Mine did not improve and in the end I stopped, and that was the right call for me. Both outcomes exist.

11