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Every step up gives me three bad days like clockwork

Started 22 April 2026 · 15 replies · 111 hearts · read 1.7k times

HalCambridge, UK · 22 April 2026
3 months ago

Every step up gives me three bad days like clockwork — putting it in its own thread so it does not get lost in the check-in.

Long one, sorry. I have been chewing on this for a fortnight.

I have read the guides here, which were more useful than anything else I have found, and I still have a question they do not cover.

I am aware some of this may be nothing. I would still like to know whether other people have had it, because I have spent a fortnight assuming I am the only one.

What I keep tripping on is not the physical bit. It is the not knowing whether what I am experiencing is normal, and having nobody to ask who is not either selling something or frightened for me.

Thanks all. Genuinely.

37

GwendaEbbw Vale, UK
#1

I asked my nurse the same question and she said something I have repeated ever since: that the aim is to keep you on treatment, not to get you up the schedule.

7

TomásFacilitatorLisbon, Portugal
#2

Gently: you have apologised three times in a post where you have done nothing that requires an apology.

12me too 9

BevanSwansea, UK
#3

What helped was lowering my own expectations of the week rather than trying to hold the week together.

9

GwennoPwllheli, UK
#4

Gently disagreeing with the opening post, or rather adding the other half of it.

My experience was very boring, which I offer as data. Some of us just get a dull time of it.

4

FlorrieBlackburn, UK
#5

I am the person who had the frightening version of this. I went in, it was investigated, and it was not what anyone feared. Going in is the whole of my advice.

3me too 4

IdrisCardiff, UK
#6

Coming back to this a fortnight later to say it settled. Leaving the update because I hate reading threads that stop.

6

BroganCumbernauld, UK
#7

What the reply above described happened to me too, in a slightly different order.

Practical, boring answer: write the three questions down before you go in. I have never once remembered them otherwise.

6

DoraUtrecht, NL
#8

I did exactly the same and felt terrible about it. You have not done anything wrong.

8

BrammyBelfast, NI
#9

The phrase that unlocked my appointment was asking what specifically she wanted me to watch for. It moved us from reassurance to a plan in about thirty seconds.

7

GwynethAberdare, UK
#10

Gently disagreeing with the reply above, or rather adding the other half of it.

Different experience here, for balance. Mine did not improve and in the end I stopped, and that was the right call for me. Both outcomes exist.

7

HalCambridge, UK
#11

Gently disagreeing with the reply above, or rather adding the other half of it.

Yes. All of this. I had the same in my third month and I remember thinking there was something specifically wrong with me, which there was not.

7

GwendaEbbw Vale, UK
#12

Mine lasted about seven weeks and then lifted over a few days. I cannot tell you why. I can tell you it lifted.

7

HeddaCopenhagen, DK
#13

Similar here, and mine turned out to be a completely unrelated deficiency picked up on bloods.

6

TomásFacilitatorLisbon, Portugal
#14

Building on what the reply above wrote rather than answering the original question.

If any of this has landed close to home for you while reading, our support resources page lists the kinds of services worth finding. No obligation and no drama.

16

GwennoPwllheli, UK
#15

No advice, just recognition. That sounds exhausting and I am sorry you are in it.

6