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Camping for a week with no electricity

Started 24 March 2026 · 13 replies · 100 hearts · read 2.2k times

OzrenZagreb, HR · 24 March 2026
4 months ago

Camping for a week with no electricity Writing it down partly to work out what I actually think.

The logistics of this are defeating me more than the medicine is.

What I would find most useful is not advice. It is somebody describing what their version of this was, and how long it went on for.

My prescriber has been fine, genuinely. The problem is that I get nine minutes twice a year and there is no version of nine minutes that covers this.

Thanks all. Genuinely.

33

NúriaBarcelona, ES
#1

Please do not read the comments under news articles about this. I lost a fortnight to that.

8

NoorFacilitatorSingapore
#2

What the opening post described happened to me too, in a slightly different order.

Noticing out loud that this conversation has drifted into comparison. That happens without anyone intending it and it does not help anyone. Let us come back to the person who asked.

15

TullaTralee, IE
#3

My experience was very boring, which I offer as data. Some of us just get a dull time of it.

5me too 4

IzoldaVilnius, LT
#4

What helped was lowering my own expectations of the week rather than trying to hold the week together.

5

VeraRiga, LV
#5

Coming back to this a fortnight later to say it settled. Leaving the update because I hate reading threads that stop.

7

NevGrimsby, UK
#6

I am the person who had the frightening version of this. I went in, it was investigated, and it was not what anyone feared. Going in is the whole of my advice.

8

AriaAuckland, NZ
#7

the reply above said something I want to sit with for a second.

I did exactly the same and felt terrible about it. You have not done anything wrong.

6

SalmaManchester, UK
#8

Practical, boring answer: write the three questions down before you go in. I have never once remembered them otherwise.

6me too 7

NissaHaifa, IL
#9

the reply above — yes, and the bit that took me longest to accept was the next part.

I am about four months behind you and I have been dreading exactly this, so thank you for writing it down before I got there.

4

MinnieDoncaster, UK
#10

Yes to the burping. It is real, it is unbeautiful, and it does settle.

5

MimiHong Kong
#11

Building on what the reply above wrote rather than answering the original question.

I asked my nurse the same question and she said something I have repeated ever since: that the aim is to keep you on treatment, not to get you up the schedule.

7

NoorFacilitatorSingapore
#12

Gently: you have apologised three times in a post where you have done nothing that requires an apology.

16

BlueStroud, UK
#13

Similar here, and mine turned out to be a completely unrelated deficiency picked up on bloods.

8