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Type 2

Coming off insulin entirely, slowly, with my team

Started 1 June 2026 · 11 replies · 67 hearts · read 1.2k times

NoahHull, UK · 1 June 2026
2 months ago

Something I have been sitting with: Coming off insulin entirely, slowly, with my team Not looking for advice so much as other people's experience.

Some background first, because it matters for the question.

What I keep tripping on is not the physical bit. It is the not knowing whether what I am experiencing is normal, and having nobody to ask who is not either selling something or frightened for me.

My prescriber has been fine, genuinely. The problem is that I get nine minutes twice a year and there is no version of nine minutes that covers this.

The thing that has surprised me most is how much of this is about other people rather than about me.

Not looking for a plan. Just company and whatever anyone has found.

22

FlossieShrewsbury, UK
#1

Yes to the burping. It is real, it is unbeautiful, and it does settle.

6

TommieEly, UK
#2

the opening post said something I want to sit with for a second.

I am about four months behind you and I have been dreading exactly this, so thank you for writing it down before I got there.

5

BirdieMargate, UK
#3

Building on what the opening post wrote rather than answering the original question.

For what it is worth, the trial data on this is thinner than the confidence of the internet would suggest. Worth knowing when you read the posts.

7

MiraFacilitatorRotterdam, Netherlands
#4

Thank you for writing this. I am not going to add information to it. I am going to say that what you have described is very common and very rarely said out loud.

8me too 2

NixLeith, UK
#5

Reading the reply above, I recognised more of that than I expected to.

The thing that changed it for me was going slower, agreed with my prescriber. I am not suggesting you do that. I am saying the conversation exists.

8

FenEly, UK
#6

Have you got anyone who can be with you when you do it? It made an enormous difference to me and I felt silly asking.

2

SamPortland, OR
#7

Practical, boring answer: write the three questions down before you go in. I have never once remembered them otherwise.

4me too 6

HarriSwansea, UK
#8

I did exactly the same and felt terrible about it. You have not done anything wrong.

3

MossHebden Bridge, UK
#9

What the reply above described happened to me too, in a slightly different order.

I would take that to a clinician rather than to us, and I would do it this week. Not because it is definitely serious — because it is the sort of thing that is much easier to rule out than to worry about.

6me too 7

MiraFacilitatorRotterdam, Netherlands
#10

Two things, both boring. First, none of us can tell you what to take. Second, the conversation you want to have is with your prescriber, and we can help you write it down.

13

HuwWrexham, UK
#11

No advice, just recognition. That sounds exhausting and I am sorry you are in it.

5