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What FLOW means for my kidneys, in plain words

Started 14 September 2025 · 15 replies · 137 hearts · read 1.5k times

MarnieAyr, UK · 14 September 2025
10 months ago

What FLOW means for my kidneys, in plain words — putting it in its own thread so it does not get lost in the check-in.

I have had this diagnosis for a long time and none of the general advice quite fits me.

I am aware some of this may be nothing. I would still like to know whether other people have had it, because I have spent a fortnight assuming I am the only one.

My prescriber has been fine, genuinely. The problem is that I get nine minutes twice a year and there is no version of nine minutes that covers this.

Sorry for the length. If anyone has been here, I would very much like to hear it.

46

IkeChicago, IL
#1

Please do not read the comments under news articles about this. I lost a fortnight to that.

9me too 3

MiraFacilitatorRotterdam, Netherlands
#2

I will leave this open for a few more days and then add it to the circle's resources, because the answers here are better than anything I would have written.

19

VivLuton, UK
#3

Similar here, and mine turned out to be a completely unrelated deficiency picked up on bloods.

6

OskarWarsaw, PL
#4

Reading the reply above, I recognised more of that than I expected to.

I have been in this circle a year and this question comes round every few months. It is not a silly question. It is the question.

7

IvesPenzance, UK
#5

the reply above — yes, and the bit that took me longest to accept was the next part.

Coming back to this a fortnight later to say it settled. Leaving the update because I hate reading threads that stop.

4

YannickBrussels, BE
#6

I am the person who had the frightening version of this. I went in, it was investigated, and it was not what anyone feared. Going in is the whole of my advice.

10

TedIpswich, UK
#7

My experience was very boring, which I offer as data. Some of us just get a dull time of it.

7

GillyWorcester, UK
#8

What helped was lowering my own expectations of the week rather than trying to hold the week together.

8me too 4

HarlanDenver, CO
#9

the reply above — yes, and the bit that took me longest to accept was the next part.

Different experience here, for balance. Mine did not improve and in the end I stopped, and that was the right call for me. Both outcomes exist.

10

GigiNaples, IT
#10

The phrase that unlocked my appointment was asking what specifically she wanted me to watch for. It moved us from reassurance to a plan in about thirty seconds.

7

BunnyWeston-super-Mare, UK
#11

The thing that changed it for me was going slower, agreed with my prescriber. I am not suggesting you do that. I am saying the conversation exists.

7me too 8

CatoAntwerp, BE
#12

Have you got anyone who can be with you when you do it? It made an enormous difference to me and I felt silly asking.

11

AshSunderland, UK
#13

Reading the reply above, I recognised more of that than I expected to.

For what it is worth, the trial data on this is thinner than the confidence of the internet would suggest. Worth knowing when you read the posts.

5

MiraFacilitatorRotterdam, Netherlands
#14

Thank you for writing this. I am not going to add information to it. I am going to say that what you have described is very common and very rarely said out loud.

16

DevManchester, UK
#15

Yes to the burping. It is real, it is unbeautiful, and it does settle.

11