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Ageing and this, at the same time

Started 5 March 2026 · 15 replies · 87 hearts · read 1.1k times

OrsolyaBudapest, HU · 5 March 2026
5 months ago

Something I have been sitting with: Ageing and this, at the same time Not looking for advice so much as other people's experience.

I have been sitting on this for a month.

What I would find most useful is not advice. It is somebody describing what their version of this was, and how long it went on for.

My prescriber has been fine, genuinely. The problem is that I get nine minutes twice a year and there is no version of nine minutes that covers this.

Anyway. Thank you for reading this far. Any experience gratefully received, and I promise to come back and say what happened.

29

NissaHaifa, IL
#1

My experience was very boring, which I offer as data. Some of us just get a dull time of it.

8

ObieNashville, TN
#2

Building on what the opening post wrote rather than answering the original question.

What helped was lowering my own expectations of the week rather than trying to hold the week together.

5me too 5

OsricSalisbury, UK
#3

Coming back to this a fortnight later to say it settled. Leaving the update because I hate reading threads that stop.

6

JonahFacilitatorCork, Ireland
#4

Before anyone offers a remedy: what has been described here is on the list of things that need a clinician today rather than a thread. I am going to be firm about that, kindly.

7

EsmeAix-en-Provence, FR
#5

I did exactly the same and felt terrible about it. You have not done anything wrong.

4

ZenBristol, UK
#6

Practical, boring answer: write the three questions down before you go in. I have never once remembered them otherwise.

8

TiborBratislava, SK
#7

the reply above — yes, and the bit that took me longest to accept was the next part.

Have you got anyone who can be with you when you do it? It made an enormous difference to me and I felt silly asking.

6me too 3

MimiHong Kong
#8

The thing that changed it for me was going slower, agreed with my prescriber. I am not suggesting you do that. I am saying the conversation exists.

7

RinManchester, UK
#9

Two things that helped me, neither of them clever: small amounts more often, and drinking a lot more than felt necessary.

2

GwythFishguard, UK
#10

Building on what the reply above wrote rather than answering the original question.

I would take that to a clinician rather than to us, and I would do it this week. Not because it is definitely serious — because it is the sort of thing that is much easier to rule out than to worry about.

8

ClémenceNantes, FR
#11

I asked my nurse the same question and she said something I have repeated ever since: that the aim is to keep you on treatment, not to get you up the schedule.

4

TavishIsle of Skye, UK
#12

Please do not read the comments under news articles about this. I lost a fortnight to that.

6

DotFalmouth, UK
#13

I have been in this circle a year and this question comes round every few months. It is not a silly question. It is the question.

5me too 6

JonahFacilitatorCork, Ireland
#14

Gently disagreeing with the reply above, or rather adding the other half of it.

I want to slow this down a little. There are four different answers flying about and they are all somebody's real experience, which makes them true and not necessarily relevant to the person who asked.

8

LulaBournemouth, UK
#15

Reading the reply above, I recognised more of that than I expected to.

I am the person who had the frightening version of this. I went in, it was investigated, and it was not what anyone feared. Going in is the whole of my advice.

3