A peer support community, independent and not for sale. Since February 2024.

GLP CircleA peer support community

Constipation and gut

My old IBS has come back and I do not know whose fault it is

Started 2 April 2026 · 7 replies · 322 hearts · read 3.5k times

PamSouthport, UK · 2 April 2026
4 months ago

Southport. Paper diary, I do not trust apps, and for once the paper diary has been the useful thing rather than an eccentricity.

I had IBS badly from about 1998 to 2015. The urgent kind. I planned my life around where the toilets were — I could tell you every public convenience between here and Preston and which of them was locked after four o’clock. Then it faded, over a couple of years, for no reason anybody identified, and I have had eleven quiet years.

Since February it is back. Not the constipation everybody talks about in here. The other thing, urgently, three or four mornings a week, and with it the old dread, which is honestly worse than the symptom. I have started doing the toilet-mapping again. I turned down a coach trip with my friend Sheila because of a two-hour stretch on the M6.

What the diary tells me: it started five weeks after my last dose increase. It is worse on the two days after my injection. It is not related to anything I eat that I can find, and I have looked hard.

Here is what I am struggling with, and it is not really a medical question. I do not know whether to be angry at the medicine. Everything else about it has been good for me — my knees, my sleep, my blood pressure, all of it. And it may have handed me back the thing that took eleven years to leave. I have an appointment on the fourteenth and I do not know what I want them to say.

107

SaoirseKilkenny, IE
#1

Gentle with myself, finally, and I want to start where you ended rather than with the symptom.

You do not have to decide how to feel about it before the fourteenth. You are allowed to go in undecided and say exactly what you have written here — that the rest of it has been good and this one thing has come back and you are frightened of it. That is a complete and honest thing to bring.

44me too 9

DaraAthlone, IE
#2

Athlone, middle of everything. I had colitis in my twenties and I went into this year braced for exactly your situation, so I asked at the start rather than after.

What my consultant said, and I offer it as her words and not as a rule: that a history like mine did not rule anything out, but that she would want to know early if anything came back, and that early meant weeks and not months, because the useful thing was to be able to tell the difference between an old condition returning and a new side effect.

Five weeks after an increase, worse on the two days after — Pam, that pattern in a paper diary is worth more than anything anybody in here can tell you. Take the diary itself.

51me too 7

OrlaithDonegal, IE
#3

Two hours from the pharmacy, planning ahead always, and the toilet-mapping is a thing I have never seen anybody else describe. I do it for a different reason and I recognised it instantly.

The coach trip is the bit I would not let go. That is your life getting smaller, and it happened in about six weeks. Whatever the answer turns out to be on the fourteenth, that is the thing I would put in front of them first.

49me too 11

TemSouthend, UK
#4

Estuary walks, named in a storm. Mine was the reverse — I had the urgent sort for the first four months and then it settled into nothing much, and my GP was fairly relaxed about it because it was improving on its own.

Improving on its own and getting worse over five weeks are different pictures and I would not want you reading my version and being reassured by it.

32me too 5

GwionBangor, UK
#5

Marine biologist, cold water, warm circle. On the anger question, since you asked it honestly.

I spent a whole autumn angry at a medicine, and what I eventually worked out was that I was angry about not being able to trust my own body’s signals, which was true before I ever started. The medicine had not taken that from me. It had made it visible again.

Might be nothing to do with your situation. It is the only useful thing I got out of three months of being cross.

43me too 8

NoleneDurban, ZA
#6

Durban. Humidity, heat, and a very good cool bag. Practical, since nobody has said it: the dread is treatable separately from the gut.

Mine was, anyway. The bowel thing was managed by a gastroenterologist over about eight months and the fear of it needed somebody else entirely, and I only worked that out when I noticed I was still mapping toilets a year after the symptoms had gone.

46me too 10

PamSouthport, UK
#7

Went on the fourteenth. Took the diary, as Dara said, and she read four pages of it properly with her chair turned away from the computer, which I have not had happen in years.

She is referring me back to gastroenterology and has spoken to the prescriber about the dose, and the two of them are going to sort something out between them. Nobody has told me to stop and nobody has told me it is nothing.

Nolene, I have thought about your reply every day since. The dread arrived back before the symptoms did, if I am honest about the diary. That is going in the next conversation.

And I have rebooked the coach trip. Sheila has found out where the stops are.

57me too 6